Lavender Lady is on a distinguished road

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Visitor Messages

Showing Visitor Messages 1 to 10 of 70
  1. HelenL
    08-18-2011 04:03 PM - permalink
    Thinking of you Rox...
  2. Sequoia
    06-22-2011 10:38 AM - permalink
    Hi Rox, thinking of you and praying that you find peace and calm in this storm of ALS. Im now having breathing difficulties too and heading towards a peg. I love you and pray for you. Can you get a dynavox with eyegaze? Then we can read your posts. Ask the ALS Guardian Angels, they gave me one. Anyways, we will not forget you, and hold your in loving prayer.
  3. HelenL
    06-21-2011 08:32 PM - permalink
    Rox, I'm keeping you in my thoughts and prayers... not sure if you're reading the forum at this point, but hopefully you'll know that many of us are thinking of you. I love the picture of you and your hubby in Hawaii, I'm so glad you both were able to take that wonderful trip!
  4. joni51
    06-21-2011 08:18 PM - permalink
    Rox You are in my prayers sweetie!!!!
  5. Zaphoon
    06-21-2011 01:22 PM - permalink
    Rox, I thought I'd drop by and say, Hi! My thoughts and prayers are with you!
  6. Lavender Lady
    06-21-2011 11:48 AM - permalink
    Lavender Lady
    Dear Sequoia, this is Kathy Baughman, Rox's sister-in-law. Her advice is to get the peg tube early for medicine and hydration. It's been a blessing for her. After the surgery, make sure they are giving you muscle spasm medications in addition to normal pain medication. She is on Hospice as of last week, June 13, and will not be able to write anymore. If you would like to contact me about anything please email me.

    Have a blessed day on the first day of summer.
    Kathy Baughman / Rox
  7. Sequoia
    06-11-2011 10:53 AM - permalink
    Rox, your pics from your trip are fabulous. You look so relaxed and lovely with your hubbie! I'm starting to cough whenever i put something in my mouth...did that ever happen to you? I had one choking experience and I thought i was going to die. If I am heading the tube way, I will pm you and get your advise.
  8. kfrancis
    06-08-2011 06:38 AM - permalink
    Roxanne Hi it's Kelly hope you remeber me. You came to lunch one day and met my husband Charles. Your pics are great, you look good. How are you doing? We are still hanging in there. Let me know how things are and how you are doing. Take care Kelly
  9. Lavender Lady
    06-07-2011 06:35 PM - permalink
    Lavender Lady
    thank you Joni hugs to you too.
  10. joni51
    06-02-2011 10:05 PM - permalink
    Rox sending a Giant HUG to you my friend!

About Me

  • About Lavender Lady
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    Lake Stevens
    State or Province


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  • Last Activity: 09-15-2011 11:33 AM
  • Join Date: 07-06-2010


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