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Visitor Messages

Showing Visitor Messages 1 to 10 of 27
  1. Atshack1234
    01-16-2016 12:49 PM - permalink
    Ktmj do you still have all those systems? What you expressed as your symptoms are the same as mine
  2. bobajojo
    09-10-2012 09:02 AM - permalink
    I saw in one of you posts that you described a pulling twitch in your tongue. Did it by chance look like this?
    After 16 months of bodywide twitching and 3 EMG's I know I have BFS. But my symptoms never seem to let up, they only get worse. I have this constant twitch in my tongue along with real fascics both seen and felt several times a day on my tongue. Just wondering if you can relate. -Matt
  3. Bfloyd
    05-12-2012 05:16 AM - permalink
    Hi , I should of probably been in er rather than here but I'm in the middle know know camping in a desolit area. I've not too much reasurching on line but I had an episode that I know is not normal. I've had twitching my lips area especially when smiling. I now have wet spots on each crease with salvia and after a real bad twitched afternoon I found y. My mouth has excess saliva and during that time I had it open and saliva would of run over if I didn't swallow. The reason Im on in middle of night is I just woke up in large sweat pool.thiughts
  4. Bfloyd
    05-10-2012 02:31 PM - permalink
    Thanks, do you mind if I keep in touch....struggled with clinical depression for years but that and chronic pain I go ahold of pretty well thorough big changes. I don't like the atrophy with all the twitching tho....but yes, I"m not going to ruin my camping trip on this one. May twitch all the way there tho! take care, see your into dirt bikes, my sister and family own the honda testing lake in GA.....If you ever get there let me know. I'll hook ya up!
  5. Bfloyd
    05-09-2012 06:01 PM - permalink
    Thanks for your response. BFS if confirmed. It seemed to be what she was saying. It has taking alot out of me physically. Some cases must be worse than others ? I'd like to know more about it. It has wrecked havoc on my body. Not the way I wanted to lose last 15 lbs. And frustrating to lose muscle that are holding my knees together!
  6. awieleba
    02-21-2011 05:50 PM - permalink
  7. AndyDJX
    09-17-2010 09:48 AM - permalink
    What's up man; I just wanted to say hi. Our cases sound very similar. Hope you're doing well.
  8. Buckeye25
    09-10-2010 08:08 AM - permalink
    Thanks for the reply to my recent post. Scary when don't know what is going on with body but know something does not feel right. Appreciate your feedback and best wishes.
  9. rose
    09-07-2010 04:10 PM - permalink
    LOVED you message to the teen dude :) ... the variation of "move on and enjoy life" :)
  10. codya13105
    07-01-2010 03:23 PM - permalink
    Yeh.. Im hanging in there.. thanks for asking.. Whatever I have is slow slow slow moving.. and I dont dwell on it anymore.. still work full time and do things I normally do.. symptoms still the same. How bout you?

About Me

  • About ktmj
    What's your relationship with ALS/MND?
    BFS and weird muscle stuff going on!
    If diagnosed, when was the diagnosis?
    State or Province
    Romans 10:9 - love my family - great wife and 17-yr old son
    Mfg Director
    Dirt bikes, hunting, fishing
  • Signature
    Romans 10:9

    BFS since 1989


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  • Last Activity: 01-20-2014 03:42 PM
  • Join Date: 10-17-2008


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