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Visitor Messages

Showing Visitor Messages 1 to 7 of 7
  1. Mesquitemr
    08-01-2018 12:19 AM - permalink
    Mesquitemr
    Born in San Diego but moved to Dallas, Tx, when I was three and to Mesquite, Tx at age five. Formative years there.
  2. Kenobi
    08-07-2015 03:02 PM - permalink
    Kenobi
    Hi, you posted on my thread about sharing the name of your neurologist who diagnosed you before going to barrows. static_firefly@live.com
  3. tyler85
    05-27-2015 06:54 PM - permalink
    tyler85
    Hello. I'm helping a friend. Please email for her info: ernestlesh@comcast.net
  4. AZmujer
    12-15-2014 10:10 PM - permalink
    AZmujer
    Hi krnNdug:

    We live in downtown Phoenix and also go to the Barrow's clinic. My husband was diagnosed in June. He could walk with a limp at the time, and had weakness in left shoulder/arm. Apparently he has an aggressive form of the disease. He's completely dependent on a wheelchair and his arms are also almost completely gone. I'm sorry that you're in this club for sure. This is a hard journey for everyone.
  5. Flashdance
    08-08-2014 11:51 AM - permalink
    Flashdance
    Hi again. FYI- I just learned these responses have limit of 1000 characters, so had to edit a lot. Kept the important info. Guess I was too chatty!
  6. Flashdance
    08-08-2014 11:49 AM - permalink
    Flashdance
    Hi! There was a bidet thread when I joined. I then saw the links at the very bottom of each page where it says "More threads on this subject". I clicked each thread I was led to.Also used the "Search" tool. Toto Jasmine and Washlet seem popular. And Brondell Swash. I Googled each of those to get more specifics from manufacturers. Found wide price range. PALS & CALS give specifics based on personal experiences-how various models work for ALS.
    Same idea with general remodeling. I also got info from my OT at my ALS Clinic. My remodeler was familiar with accessibility features- I ended up with an awesome bathroom 2 wks ago. Roll-in shower, grab bars & towel bars I can reach (for now), pedestal sink with lever handle & room underneath for a shower chair, non-slip floors & raised toilet with a Coco 9500 bidet seat (on sale at the time).
    Hope this helps & isn't too much info! Keep us posted!
  7. adozi
    06-30-2014 03:23 PM - permalink
    adozi
    Hello! I answered you in the thread, so everyone can see. I'm sorry for not giving the link initially. I was being lazy. Welcome to the forum!

About Me

  • About krnNdug
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    02/2014
    City
    Gilbert
    State or Province
    AZ
    Country
    US
    Biography
    Married with 3 kids and 3 granddaughters. Very active in our church. Love life.
    Occupation
    Disabled (previously management)
    Interests
    Dog, reading. Previously golf, tennis, hiking.

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  • Last Activity: 07-23-2018 02:34 AM
  • Join Date: 05-18-2014

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