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Visitor Messages

Showing Visitor Messages 1 to 10 of 10
  1. Jlynn
    03-06-2018 12:43 PM - permalink
    Hi Kate, I'm hoping your getting my messages. I'm not much into the computer so am hoping I'm doing what I'm supposed to do to get a message to you! Let me know. If you don't hear from me then I'm not doing something correctly. Jamie
  2. Sampit
    02-18-2018 12:04 AM - permalink
    Hi Kate,

    My sister just got diagnosed with ALS, she is 51. Not sure what is the starting point.you have gone through the pain and shipping we can tap into your experience to help my sister manage the pain and emotions better.

    Do you think any of the alternate treatments...homeopathy or naturopathy work. What special focus we should give to the the diet. Also I read you mentioned about the testing for mineral levels, can you share that.

    Sorry too many questions, but at the moment I M looking for any straw to hang onto.

  3. marieandian
    07-06-2017 09:42 PM - permalink
    Oh I hope you feel better soon Kate. Don't worry about replying soon. I appreciate your advice. Take care xx
  4. KateEmerson
    06-30-2017 08:52 PM - permalink
    Hi Marie Laurie, just wanted to let you know that I will respond to your message when I am a little more rested. My husband has been sick and I am just exhausted. I am thinking of you and am sorry for the losses you are experiencing.
    I would feel scared too. I have found, as have others on this site, that really focusing on today and what you CAN do really helps. Will get back to you soon, Kate
  5. marieandian
    06-29-2017 07:14 PM - permalink
    If you don't mind me asking Kate , how did your husband start and what stage is he at?x
  6. marieandian
    06-29-2017 07:12 PM - permalink
    I'm sorry to hear your husband is Ill Kate. It must be heartbreaking for you. I could not imagine it happening to any of my loved ones. I am in the early stages .My voice is disappearing , something I thought I could cope with but I don't think I really accepted what was happening. Now my legs are so heavy I know its travelling. If I admit it I'm really scared of what comes next. My first neuro examined me and said I think you have something incurable and untreatable. And left me with that. I paid private to see another one ,she told what she suspected and said to have hope. She wouldn't take the 150 fee off me. How many people do you meet like that Kate. She's lovely. I had a clean emg which she said is common with pseudo bulbar palsy. She asked would I mind getting a second opinion off her associate he said the same. Now my legs are giving in . I see the neuro again in July and another emg in 3 months .x
  7. marieandian
    06-28-2017 04:20 AM - permalink
    Kate thank you for welcoming me . I don't discuss my illness with any one as it hurts them and it hurts me to see them hurt. Does that make sense. Here on this forum I feel I can let go a bit. But slowly. X
  8. Narrowminded
    12-14-2016 10:10 PM - permalink
    Kate thank you for reaching out. I'm sorry for the delay but I never saw this. It's interesting, first time ever logging in on my phone and it pops up

    Yes friends tend to disappear since we cant go to them very often.

    It's wonderful to have the connections on here as we all get it.

    Have an awesome day tomorrow and I'll try to figure out how to find this area again


  9. KateEmerson
    10-09-2016 02:20 PM - permalink
    Hi Lisa,
    I am so sorry for not responding sooner but I just saw your message. This is the first forum I have ever been on and have had no idea how it all works. I am 63 and my husband is 80. My husband started with respiratory failure, was trached, and put on a ventalator 24/7 in Sept. 2013. I am so glad you reached out to me, I, too, have felt very alone. In the three years of this disease I have never spoken to another caregiver and have wanted to so desperately. I am holding it together, trying to live in the moment, with utter exhaustion being the most difficult challenge at the moment. I would welcome sharing if that is something that you would like also. Kate
  10. Labinma
    09-29-2016 06:28 PM - permalink
    Hi Kate, you seem like a relatively new member and located in Boston! How are you doing with all this? My husband was diagnosed in 2014, I feel extremely alone trying to understand everything. May I ask what age bracket you guys are in? I am almost 50 and my husband is 52. Lisa :)

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  • About KateEmerson
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
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