karenaustralia is on a distinguished road

karenaustralia karenaustralia is offline

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Showing Visitor Messages 1 to 10 of 53
  1. morningdew
    07-15-2010 02:42 AM - permalink
    morningdew
    Hi, \Karen, I looked down your profile page just now and found two messages that had not appeared on my page, so thank you for them, but that is why you have had no reply.
    My symptoms aren't all that bad. I have orthotics to help my feet, the drop foot in particular, and I can't walk all that far. In the limited walking I do in our tiny town it doesn't show too much. My feet used to be painful, but now it's just the weakness that's bothersome. I'm always draping myself over things, such as the breakfast bar, when standing talking to people. Going to Perth next week for my sister's Golden Wedding. They aren't having much, because David, her husband, has just had a knee replacement and is on crutches, but we're going to eat at the Red Herring. Lovely seafood! yes, I can do private messages. love, Joan
  2. morningdew
    07-15-2010 02:31 AM - permalink
    morningdew
    Hi, Karen, I've been taking a bit of time adjusting my thoughts. I accept that I probably don't have als, but I definitely still have worrying symptoms. I'm managing not to think about them too much, and I don't dwell on my twitches any more. They're just there. I'm a little worried about my voice, hoping it's just in my mind. I'm tripping as I never have before, or not that I noticed. yesterday at a meeting someone finished my sentence for me when I tripped up, and that is certainly a new experience. I think the problem word was "before". How are you managing? Do you manage to get out at all? Do you have a social life? It's so good that you have your Mum to help. Has it been in your family?
    I'm thinking about you, even when I'm silent. Lots of hugs!. Love, Joan
  3. BarryG
    07-06-2010 08:46 PM - permalink
    BarryG
    Hi Karen, it is good to hear from you. So sorry about your speech, it is hard but you can still have a voice. All it takes is practice on your part and patience on the part of the others. I am doing ok, getting more wobbly but ok never the less.
    Barry
  4. karenaustralia
    07-05-2010 07:04 PM - permalink
    karenaustralia
    What did they say was the cause of your drop foot is it very pronounced?? special shoes and splints can help with this but i didnt go with that it was too awkward ... can you post private messages on here yet ? i think you have to reply to 20 threads then you can .. but for now here is my e mail feel free to write as much as you like and yeah i can still type thank goodness .. karenp62@live.com.au talk soon :) karen x
  5. karenaustralia
    07-05-2010 06:57 PM - permalink
    karenaustralia
    HI Joan you sound so much better now ( realistic ) but more at ease ... i am not aware of PLS but will look it up so i know where your at ... i told you your fasmily would be there in every way just like you have always been for them :) can you move your legs etc by yourself ?? i think the psysio is a great idea to keep your muscles working ... mum massages and exercises my legs every day ( LOVE HER !! ) and it has helped heaps Contd
  6. morningdew
    07-05-2010 09:22 AM - permalink
    morningdew
    PS Would it be easier for you to email? Can you still type yourself? We could send private messages with our email addresses.
  7. morningdew
    07-05-2010 09:20 AM - permalink
    morningdew
    Hi, Karen, yes, my family were with me all the way, and my son in New Zealand sent the most beautiful flowers. I'm feeling better mentally, iof course, but I'm well aware it's not the end of the story. The symptoms are too evident. I think I'll make contact with the local physio. it would be good to talk about the actual problems like the dropped foot with someone.
    Do tell me how your own problems are. Hope everything is not too bad. Love, Joan
  8. Howard
    07-04-2010 02:11 PM - permalink
    Howard
    Hi Karen,thank you for your message,I have been away for a while.Hope you are doing ok,take care
  9. luvnmm
    07-04-2010 07:58 AM - permalink
    luvnmm
    Hey Karen!
    I haven't heard from my Aussie connection lately. How are you doing? How are things going? Pretty good on this end of the world.
    Take care and let me hear from you soon.
    Love and hugs!
    Linda
  10. morningdew
    07-03-2010 04:14 AM - permalink
    morningdew
    Hi, Karen. You may have seen my result on my general thread. No Als, but symptoms there. Come back in six months. So I'm wondering about PLS now. It would probably fit. Anyway, I'm going to try and keep my mind off the whole thing as much as possible. How are you? And your family? It's so good that your Mum is able to help you. This forum is so wonderful, the way people going through the same thing can help each other. I know what you mean about Dr P's bedside manner. He wasn't terribly communicative, though he did point out that even though the emg seemed to be clean, I still had the fasciculations etc. I stayed in bed mainly in the hospital, and I'm now oh so stiff, especially my back! But it's what they seemed to expect. Love and hugs, Joan

About Me

  • About karenaustralia
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    04/2009
    City
    perth
    State or Province
    wa
    Country
    AUS
    Biography
    Im 48 a free spirit have a wonderful partner and two amazing grown up kids
    Occupation
    I used to be a Child Care Co ordinator and have a teacing degree
    Interests
    reading mainly spirituality and afterlife,long rides with my dog, computer , family

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  • Last Activity: 08-15-2010 07:58 PM
  • Join Date: 05-22-2010

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