js58 is on a distinguished road

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Showing Visitor Messages 1 to 3 of 3
  1. Erica
    02-01-2011 09:32 PM - permalink
    Js, just checking to see how you doing. Hope your clinic/consultation appt went well and are out of the ALS shadow.
    Best wishes, Erica
  2. js58
    01-18-2011 08:24 AM - permalink
    Erica, the aspiration started a year ago and the shortness of breath when I exert started 6 months ago. 10 years ago my major problem was fatigue and muscle pain...that's why the dermatomyositis diagnosis. But then much later, the other started. National Jewish believes I still have dermatomyositis, but think it is possible something else is also going on.
    I truly am trusting God on this. When we know, we know. Thanks for posting and have a great day.
  3. Erica
    01-17-2011 08:51 PM - permalink
    Stay positive! If your first symptoms started in 2000, it would be very unusual for bulbar to take 10 years to develop.
    Same goes for axial onset.
    I think it might be something else and your docs will need to dig deeper.
    Stay strong and keep in touch.

About Me

  • About js58
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: 06-12-2012 07:21 AM
  • Join Date: 01-15-2011

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