js58

Js, just checking to see how you doing. Hope your clinic/consultation appt went well and are out of the ALS shadow.
Best wishes, Erica

Erica, the aspiration started a year ago and the shortness of breath when I exert started 6 months ago. 10 years ago my major problem was fatigue and muscle pain...that's why the dermatomyositis diagnosis. But then much later, the other started. National Jewish believes I still have dermatomyositis, but think it is possible something else is also going on.
I truly am trusting God on this. When we know, we know. Thanks for posting and have a great day.

JS,
Stay positive! If your first symptoms started in 2000, it would be very unusual for bulbar to take 10 years to develop.
Same goes for axial onset.
I think it might be something else and your docs will need to dig deeper.
Stay strong and keep in touch.