jpsteeler99 is on a distinguished road

jpsteeler99 jpsteeler99 is offline

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Showing Visitor Messages 1 to 3 of 3
  1. mich5
    01-12-2013 09:15 AM - permalink
    mich5
    Hi, jp! Just read you're starting the DP. I'm wondering how you're going to manage the Intravaneous injection? Is your dr going to administer that weekly for you? And, if so, do you need to obtain the supplement or does your dr obtain it? I'm toying with starting the DP but don't know how to go about this portion of it.
  2. jpsteeler99
    10-29-2012 10:08 PM - permalink
    jpsteeler99
    I have very stiff legs escpecially when I am cold or nervous. Nothing seems to help. Maybe the Baclofen would have but it made me so tired and the neck pain was unbearable.
  3. ltbeauti
    10-12-2012 10:04 PM - permalink
    ltbeauti
    Hey I read that you traced your neck pain to Baclofen. I have been having neck pain off and on for the last 6 months. I have recently been very tired also. My nuero suggested weaning off the Baclofen to help with the tiredness. I sure hope that it helps with the neck pain too.
    Did you have bad stiffness without the Baclofen, if so are you taking anything now for that.

    Thanks !

About Me

  • About jpsteeler99
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    06/2012
    City
    Waldwick
    State or Province
    NJ
    Country
    US
    Occupation
    Parts Manager
    Interests
    ATVs, NFL, NHL, Snowbaoarding, My kids

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  • Last Activity: 04-25-2016 08:37 PM
  • Join Date: 06-07-2012

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