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Showing Visitor Messages 1 to 10 of 10
  1. HockeyCoach
    05-02-2017 05:59 PM - permalink
    Hello Joy, I have very similar symptoms as you listed. Did you ever get a diagnosis?
  2. canadian27
    04-17-2012 06:31 PM - permalink
    Congratulations, truly happy for you... Wish you the best and hope that I'm as lucky as you
  3. canadian27
    04-11-2012 11:15 AM - permalink
    Hey joy,
    Sorry that you hadn't heard from me in awhile, trying to stay off the site until all my appts come and go, even though it's been all I've thought about. Things haven't been very good, still lots of twitches, things have become heavier in my right hand/arm, voice is a bit nasally and weak, so obviously I'm still very worried and thinking about it has taken up all of my time. I finally have my MRI this weekend and my first neuro appt on the 25th, although I don't think an emg is planned for that date unfortunately. Hope you're doing well, I'm sure everything will work out for you, I wish you luck I could use some too, thanks
  4. canadian27
    03-20-2012 01:14 PM - permalink
    Hey joy good luck!
  5. canadian27
    03-07-2012 08:23 PM - permalink
    Hey joy, any news? Updates. Finally got both an
    MRI and a neuro appt, still don't know the dates tho, how are you doing? I seem to be getting worse but will admit I don't think I've ever been this stressed in my whole life. So that might have something to do with everything. Hope your sound well tho, best wishes
  6. canadian27
    03-05-2012 08:20 PM - permalink
    Hey joy, thanks for the response, still awaiting my MRI to even be scheduled, a requisition has been put in but I'm stil awaiting the date, as well as waiting my doctor to give a referral to a neurologist. How long of a wait will you have? And updates or test results? Best of luck, keep thinking positive. Btw do you have fasiculations too?
  7. tbuchanan13
    03-04-2012 05:15 PM - permalink
    Hi Joy...I just feel that you need to have many...many...many more tests ran before you can state you have ALS. Trfogey does know what he is talking about...although I do not agree with his presentation. :) Keep going to your doctors and have them do testing...most of the testing will be to rule out other diseases that can look like ALS. God bless and keep smiling!
  8. canadian27
    03-03-2012 10:43 AM - permalink
    Hi Joy! I've read your posts and your story and all of your symptoms are eerily the same as mine, I too am worried, have not been diagnosed with anything and am just starting the testing phase, having bloodwork and a holter monitor, and am currently awaiting a head MRI. I was just wondering if you could keep in touch with me if you hear anything from any of your tests, since your story seems exactly like mine to this point. Best of luck to you and your family, I'm sure everything will turn out great for you.
  9. tbuchanan13
    03-02-2012 09:28 PM - permalink
    Hi thing is for certain. My dad has not had any pain. I wanted to apologize to you about the posts between Trofgey and I. I just felt that you were seeking out support and he was not having any type of compassion...and it came across as rude...and I did let him know it. Just because he knows a lot about ALS...doesnt mean he can be rude when answering questions. BUT enough about him....continue to go to your doctors...I do agree that your symptoms do not signal ALS. BUT let the doctors tell you that...not a forum or websites. Either way, whatever is going on with you is scary for you...and do not let anyone discount your feelings....on the other one has stamped an expiration date on you. Live your life...and again love on your kids and husband. NO ONE is guaranteed for today. :)
  10. tbuchanan13
    03-02-2012 09:37 AM - permalink
    Hi Joy! My dad started having weakness and loss of muscle tone in his calfs. He then started walking with a limp and would slap his foot down...we now know that as drop foot. That was July of 2011. When he called the VA hospital...they thought he possibly had a he went and started having tests run. They did a TON of tests!! It affects the motor neurons. He had twitches in his muscles...they were visible, but it was almost like they were receiving little shocks and tightening and then releasing. Since then, he has had a steady progression of losing his muscle tone in both his legs and arms....and now his speech is starting to be affected. I know you are worried. Its a very scary thing...I guess my thought is...what made you think ALS? My thoughts and prayers go out to you.

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  • About joy2
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
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  • Last Activity: 09-15-2012 11:01 AM
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