jethro

Happy Birthday! I haven't been diagnosed, but continue to have issues, hence my lurking around here. I just wanted to tell you that i enjoy your posts and your sense of humor. You have made me laugh out loud more than once! I wish you quick wit and slow progression in the year to come...God bless you. April

Hi jethro. Dis you see my reply?

Sorry for my very late reply....i haven't seen the badge of private messages....
Hi jethro i read only now!!


for the questions: left: calf atrophic, quadriceps not proper atrophic right: not visual atrophy. she can walk very little, i don't know the distance because now she reduce the time that she walks due to the negative feelings comes from the legs . she lives on 3rd floor and now usually she is able to do this without stop or at least 1 stop. she is 62, now she loose weight due to the very hot summer ( i also loose weight), no problems in hands.

Thank you for the link. I'm not sure if I'll watch it, I can't sit still for too long. ;)

Hey, thank you!
I found the movie here too: https://openload.co/f/ltufEQM7gXc/huw-935.mkv
You can upload the subtitles I posted and they work very well! Just be careful if you have limited hand movements because there are some pop-ups on that website!

Below is the article link. In there you will find a link to the conference call. In the box on the bottom, the link is next to where it says “Webcast”.
You need to login providing your email etc. and then you should be able to listen to the whole conference call by Lebovits.
http://ir.brainstorm-cell.com/phoenix.zhtml?c=142287&p=RssLanding&cat=news&id=2352732
I hope this helps.
Oya

Hi, same with my legs. Weakness in arms also. We have limb onset.
I used TENS on an injury when I was younger. Didn't help then. Like I said, I wouldn't want to use it now. I believe it would increase fatigue, cramps and fasciculations for me now. Everyone is different! Good luck!