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jethro jethro is offline

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Showing Visitor Messages 1 to 6 of 6
  1. Foxmark
    08-10-2018 05:13 PM - permalink
    Foxmark
    Hi jethro. Dis you see my reply?
  2. Foxmark
    08-09-2018 07:57 AM - permalink
    Foxmark
    Sorry for my very late reply....i haven't seen the badge of private messages....
    Hi jethro i read only now!!


    for the questions: left: calf atrophic, quadriceps not proper atrophic right: not visual atrophy. she can walk very little, i don't know the distance because now she reduce the time that she walks due to the negative feelings comes from the legs . she lives on 3rd floor and now usually she is able to do this without stop or at least 1 stop. she is 62, now she loose weight due to the very hot summer ( i also loose weight), no problems in hands.
  3. wishmobbing
    06-24-2018 01:21 PM - permalink
    wishmobbing
    Thank you for the link. I'm not sure if I'll watch it, I can't sit still for too long. ;)
  4. IgorZilio
    06-24-2018 10:17 AM - permalink
    IgorZilio
    Hey, thank you!
    I found the movie here too: https://openload.co/f/ltufEQM7gXc/huw-935.mkv
    You can upload the subtitles I posted and they work very well! Just be careful if you have limited hand movements because there are some pop-ups on that website!
  5. oya99
    06-09-2018 10:19 PM - permalink
    oya99
    Below is the article link. In there you will find a link to the conference call. In the box on the bottom, the link is next to where it says “Webcast”.
    You need to login providing your email etc. and then you should be able to listen to the whole conference call by Lebovits.
    http://ir.brainstorm-cell.com/phoenix.zhtml?c=142287&p=RssLanding&cat=news&id=2352732
    I hope this helps.
    Oya
  6. mpnatx
    05-07-2018 06:22 PM - permalink
    mpnatx
    Hi, same with my legs. Weakness in arms also. We have limb onset.
    I used TENS on an injury when I was younger. Didn't help then. Like I said, I wouldn't want to use it now. I believe it would increase fatigue, cramps and fasciculations for me now. Everyone is different! Good luck!

About Me

  • About jethro
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    09/2017
    City
    ZAGREB
    State or Province
    Croatia
    Country
    HR
    Biography
    Born in 1968. First onset 3/15. Confirmed that i have ALS 9/17. I have nothing to lose but my life.
    Occupation
    BSc Petroleum Engineer and Professor of Geography, SAP ERP and Business Intelligence Coordinator
    Interests
    Genetics
  • Signature
    First they ignore you, then they laugh at you, then they fight you, then you win.
    Mahatma Gandhi

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  • Last Activity: 10-17-2018 04:23 AM
  • Join Date: 11-02-2017

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