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Visitor Messages

Showing Visitor Messages 1 to 7 of 7
  1. April E
    01-11-2019 01:44 AM - permalink
    April E
    Happy Birthday! I haven't been diagnosed, but continue to have issues, hence my lurking around here. I just wanted to tell you that i enjoy your posts and your sense of humor. You have made me laugh out loud more than once! I wish you quick wit and slow progression in the year to come...God bless you. April
  2. Foxmark
    08-10-2018 06:13 PM - permalink
    Hi jethro. Dis you see my reply?
  3. Foxmark
    08-09-2018 08:57 AM - permalink
    Sorry for my very late reply....i haven't seen the badge of private messages....
    Hi jethro i read only now!!

    for the questions: left: calf atrophic, quadriceps not proper atrophic right: not visual atrophy. she can walk very little, i don't know the distance because now she reduce the time that she walks due to the negative feelings comes from the legs . she lives on 3rd floor and now usually she is able to do this without stop or at least 1 stop. she is 62, now she loose weight due to the very hot summer ( i also loose weight), no problems in hands.
  4. wishmobbing
    06-24-2018 02:21 PM - permalink
    Thank you for the link. I'm not sure if I'll watch it, I can't sit still for too long. ;)
  5. IgorZilio
    06-24-2018 11:17 AM - permalink
    Hey, thank you!
    I found the movie here too:
    You can upload the subtitles I posted and they work very well! Just be careful if you have limited hand movements because there are some pop-ups on that website!
  6. oya99
    06-09-2018 11:19 PM - permalink
    Below is the article link. In there you will find a link to the conference call. In the box on the bottom, the link is next to where it says “Webcast”.
    You need to login providing your email etc. and then you should be able to listen to the whole conference call by Lebovits.
    I hope this helps.
  7. mpnatx
    05-07-2018 07:22 PM - permalink
    Hi, same with my legs. Weakness in arms also. We have limb onset.
    I used TENS on an injury when I was younger. Didn't help then. Like I said, I wouldn't want to use it now. I believe it would increase fatigue, cramps and fasciculations for me now. Everyone is different! Good luck!

About Me

  • About jethro
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    Born in 1968. First onset 3/15. Confirmed that I have ALS 9/17. I have nothing to lose but my life.
    BSc Petroleum Engineer and Professor of Geography, SAP ERP and Business Intelligence Coordinator
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    First they ignore you, then they laugh at you, then they fight you, then you win.
    Mahatma Gandhi


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  • Last Activity: 02-19-2019 10:08 AM
  • Join Date: 11-02-2017

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