Jennifer51 is on a distinguished road

Jennifer51 Jennifer51 is offline


Visitor Messages

Showing Visitor Messages 1 to 10 of 24
  1. rose
    11-27-2011 08:40 AM - permalink

    I know how much your family is missing you this Christmas Season. You are much loved and missed. xo
  2. rocmg
    11-13-2009 10:40 PM - permalink
    your loss will be felt in every aspect of life you touched. i feel for your family and the people who knew and loved you in peace jennifer.
  3. handinhand
    11-01-2009 01:42 PM - permalink
    To Jenn's family, She was such a huge help to me starting in Feb this year when I dx with Bulbar ALS. I will miss her terribly..... Her Family will be my prayers.. Linda
  4. Jennifer51
    10-23-2009 02:10 PM - permalink
    Hello all. I was just coming on to tell everyone that I wont be on any more. I am on oxygen now and everything is such an effort now.I dont think I have long left. I dont want to carry on like this now. Thanks for all the friends I have made. jennifer
  5. handinhand
    10-13-2009 12:30 PM - permalink
    Hi Jenn, how are you doing these days? I am in Denver.Going to see the nero on the 15th... My kids had a fundraiser here last weekend for me. So I can get my voice device. It was very touching and was also a huge help. Take care and I truly have been wondering how you are coping? Hugs, Lin
  6. rocmg
    09-17-2009 09:01 AM - permalink
    hi jenn... mum elected not to take rilutek so we haven't been having a problem with that. i've heard some very exciting things about KNS and I believe stage 3 of the trial is to open up at centres in Europe and UK (previously it had only been tested in America.) Ask your neuro about it, look on the Knopp Neurosciences website for details. there's plenty of reasons to be hopeful :D
  7. rocmg
    09-16-2009 02:38 PM - permalink
    jennifer... sorry to hear you weren't feeling so great when we last spoke... have you had any good luck with plateauing recently? couple of questions for you: are you on patientslikeme and will you have the opportunity to enroll in the KNS trial?
  8. handinhand
    09-02-2009 01:10 AM - permalink
    Hi Jenn, Oh my gosh, last night I had a total melt down. We had [rich and I] a wonderful weekend. We went to Denver ,visited with family,got back home and I just lost it... Don't know why ,maybe too tired. I felt so sorry for Richard. I try and ccry when he is not around. Anyway, I think it is because I am really having a hard time talking and eating. Just so sad and so darn hard..... How are you doing? Hugs, Lin
  9. rocmg
    08-31-2009 01:47 PM - permalink
    hi jenn... i did sign it, i think -- will sign again. you posted it in a post on the forum a while back i think..... how are you doing?
  10. handinhand
    08-14-2009 12:52 AM - permalink
    Hi Jenn, How are you doing these days? I have been gone for a couple of weeks. Went to Yellowstone with Rich. It has been real nice... I feel like I want to do everything this year while I can walk and talk and eat... All three of those things are getting harder and harder for me. This month has been the month for twitching ????? everywhere???? My fingers are starting to lock down and HURT!!! I feel like this is happening way too fast.... It was interesting to find out that I can't eat an ice cream cone. My lips don't work right??? I tried eatting a choc candy bar today and it was all over my mouth. This is just crazy. I am trying to keep a good attatude about this ,but it gets harder each day.....Oh, you said that you are not sure about my email address? Hugs, Linda

About Me

  • About Jennifer51
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    Age 56, dx Mar 08. Live london and part time florida.
  • Signature
    Jennifer London UK DX pseudo bulbar March 08

    MND (ALS)
    Kill the disease, not the patient.


Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 01-10-2010 02:54 PM
  • Join Date: 07-07-2008


Showing Friends 1 to 10 of 11

All times are GMT -5. The time now is 11:17 PM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016