Jeanau is on a distinguished road

Jeanau Jeanau is offline


Visitor Messages

Showing Visitor Messages 1 to 10 of 13
  1. Lorali
    03-23-2016 10:06 PM - permalink
    One of things I wanted to let you know about is the advanced illness services through my dad's insurance company was very informative and helpful. If you have the same company I could give you the name of who we had . . She always made me feel better. Also I have a piece of equipment I can give you if you're interested. Lori
  2. Lorali
    03-22-2016 09:27 AM - permalink
    I'm from the Pittsburgh area too. My dad passed from ALS last year . . he was diagnosed by Dr. Lacomis at UPMC. (I work in RIDC Park.) Being new to the forum I don't yet have the selection to private message (my username doesn't even show up on the Member List), but I would like to ask you something. Not sure if you reply to my message maybe we can exchange emails -- Lori
  3. 4tloml
    01-21-2016 12:50 AM - permalink
    Saw your post today in PALS thread, so just want you to know I'm keeping you in thought and prayer, lovely Audrey. Wishing you a rainbow in your cloudy day and that you'll feel the sun on your shoulders again soon. --Cindy
  4. fionae
    10-07-2015 10:37 PM - permalink
    Dear Audrey, I just wanted to let you know that I am thinking of you. You are in my prayers. God Bless You, Audrey. Always, Laura.
  5. fionae
    09-25-2015 11:10 PM - permalink
    Dear Audrey, thank you so much for being my friend. I hope this post will get through to you. Each time I attempt something on the computer that I'm not that used to, I wonder if it's really going to work right!!! I know it is late there...we have a 3 hour time difference what with me being in San Diego. My best to you. I hope you had a lovely day, and will have a peaceful weekend. Sincerely, Laura.
  6. NeedCourage
    04-13-2015 10:20 PM - permalink
    Greetings from another Pittsburgher. We moved a bit north and now live in Beaver County for the past 6 years or so. My husband was diagnosed at Allegheny General by Dr. Rana who is the director of the ALS clinic there. Have you attended a Clinic ??

    I'm here if you feel like chatting, ranting or need a hug. I'm good at hugs!
  7. TGB1
    04-11-2015 11:08 PM - permalink
    Hi, I saw you are from Pgh. and I wanted to touch base. I'm in the South Hills and my mom (87) passed from bulbar onset als shortly before Christmas. I hope you are doing as well as you can be.
  8. anderkling
    02-20-2015 02:25 PM - permalink
    Thanks for letting me know how you are doing. I'm glad you got to go to Florida and see your sister. Why was it a good idea you cancelled the cruise? I too am adjusting to being in a wheelchair. In December I was still teaching full time, and walking (limping) around. I keep offering my loss of independence to the Lord, and turning to Him again and again with tears and with trust. I find that things are not as hard when I focus on Him. My doctor encourages me to go places and "create memories" while I can. If you would like to email me, I'm at We could perhaps communicate more personally that way. You are in my prayers.
  9. anderkling
    02-18-2015 07:48 PM - permalink
    Audrey, I've been wondering how you are doing lately. I'm hoping and praying that your decline is levelling off, and you are having some better days. I find I need to get lots of rest. "Let us fix our eyes on Jesus, the author and perfecter of our faith who for the joy set before Him endured the cross." (Heb.12)
    - Charlene
  10. anderkling
    01-27-2015 09:01 PM - permalink
    Jeanau, about being anxious about the process of dying with ALS, my social worker and others have said that it doesn't have to be so bad. People toward the end sleep more and usually pass away in their sleep, not choking or fighting for air.

About Me

  • About Jeanau
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    Trying to take it all (ALS) in!
    Retired Educator
    Writing, sewing and reading


Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 06-20-2016 09:44 PM
  • Join Date: 01-21-2015


Showing Friends 1 to 2 of 2

All times are GMT -5. The time now is 05:45 PM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016