jdd61

jdd61 ... I have posted some links about FLD and bulbar onset. You might want to check them out. My husband now resides in the Palliative Care Unit and had fought me this entire way for his care. HIs FLD made life very difficult and I SO understand what you are going thru. I think I put the links on my blog... You are not alone in your journey... reach out to all those that have travelled this path already. They have been my inspiration for the last year

Jd, if you would like a pen pal through this please feel free to email me. I am a full time caregiver to my mom who was diag in May 2008. She has a peg and is on a vent so I'm kind of familiar with the routine. My name is Tracy and my email is TRLESH@YAHOO.COM