Jaycee is on a distinguished road

Jaycee Jaycee is offline

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Showing Visitor Messages 1 to 4 of 4
  1. LK92
    09-11-2018 04:15 PM - permalink
    LK92
    Sorry posted that message by mistake and didn't finish.
    If you want to continue this conversation you can email me, it'll be easier for me to reply.
    dasha.kurovskaya@gmail.com
  2. LK92
    09-11-2018 04:13 PM - permalink
    LK92
    Hi Jaycee,

    The lung specialist viewing my results showed no concern about my spirometry yet I know this was not kind of normal. My FVC was 79%, FEV1- 84%, and the ratio was 90%. I also had a chest X ray which showed mild hyperinflation and also minimal biapical pleural thickening (not sure what caused this but I had it 5 years ago too). So now I am not thinking about ALS much though the symptoms frightened me in the beginning. You should not worry about it too. I am sure that "something" we have is not ALS.
    I saw a neuro a month ago, had an EMG, the doc said that everything looks perfect.
    I am going to have a sleep study next month. I am going back home for 3 weeks soon so I am going to have some tests done there (it is easier and faster than here). I will do a CT of my lungs, maybe will see a ENT and do some tests for my throat (fib laryngoscopy). That ENT I saw here was dismisisve so I don't really trust him

    My symptom
  3. CihanY
    03-28-2018 01:27 PM - permalink
    CihanY
    Hey there,

    I kinda have the same symptoms as you (for like 5 months now) and I am 25 years old. I would like to ask you a couple things. Can you sleep normally or do you wake up every couple hours? How is your coughing if you work out ( I cough like crazy whenever I work out/ also my muscles feel dead a couple days after)? How is your swallowing now and how did it start ( I've had a weird pain in the right side of my neck, couldn't swallow, but it went away over days/weeks, stll have the lump in the throat feeling). I am going to a neurologist in 2 weeks and would like if you could keep me updated about your progression.
    Best of luck to you !
    Cihan
  4. dani001
    02-09-2018 03:42 AM - permalink
    dani001
    Hey there,

    thanks for your message. I can imagine how hard that is for you. I really need to push for an EMG and I know I should have but he blew me off. Yes I have but there's not a lot we can do at this point as nothing is helping me. I think i need to see someone who specialises in the MSK areas of neuro. I hope you get some good answers soon

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