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Jaycee Jaycee is offline

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Showing Visitor Messages 1 to 2 of 2
  1. CihanY
    03-28-2018 12:27 PM - permalink
    Hey there,

    I kinda have the same symptoms as you (for like 5 months now) and I am 25 years old. I would like to ask you a couple things. Can you sleep normally or do you wake up every couple hours? How is your coughing if you work out ( I cough like crazy whenever I work out/ also my muscles feel dead a couple days after)? How is your swallowing now and how did it start ( I've had a weird pain in the right side of my neck, couldn't swallow, but it went away over days/weeks, stll have the lump in the throat feeling). I am going to a neurologist in 2 weeks and would like if you could keep me updated about your progression.
    Best of luck to you !
  2. dani001
    02-09-2018 02:42 AM - permalink
    Hey there,

    thanks for your message. I can imagine how hard that is for you. I really need to push for an EMG and I know I should have but he blew me off. Yes I have but there's not a lot we can do at this point as nothing is helping me. I think i need to see someone who specialises in the MSK areas of neuro. I hope you get some good answers soon

About Me

  • About Jaycee
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: Yesterday 04:46 PM
  • Join Date: 12-20-2017

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