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indigosd is an unknown quantity at this point
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indigosd indigosd is offline

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Visitor Messages

Showing Visitor Messages 401 to 410 of 411
  1. Dave C
    11-16-2009 01:51 PM - permalink
    Dave C
    Hello to you as well. We cant really afford preschool or daycare with everything going on, although i have met with the local school district and once they turn 3 (January) they will be eligible for theirs which is paid for with taxes. Jen is not on Paxil and the Rilutek made her terribly fatigued, so she only takes a half dose of it.

    Sorry to hear of your husbands diagnosed, is it official? I know it is different with everyone but it seems like there should be more information out there.

    Thoughts and prayers to you and your family.
    Dave
  2. Big Mike
    11-16-2009 12:22 AM - permalink
    Big Mike
    Hi indigosd,

    I have not tried the IV glutathione. Cost prohibitive for me. I am on a variety of vitamins and other supplements, including alpha lipoic acid, N-acetyl cysteine, trimethylglycine, and acetyl-l-carnitine. The N-acetyl cysteine and trimethylglycine helps to produce gluathione in you body. Medical marijuana is legal in Montana, and I will be soon trying that with the aid of a vaporizer. It seems marijuana helps slow disease progression in some PALS.

    Montana is a beautiful state, isn't it?
  3. hopingforcure
    11-05-2009 09:46 PM - permalink
    hopingforcure
    Hope you are having a wonderful vacation. Let us know how things were when you return. Hugs
  4. Raydavis
    10-29-2009 06:55 PM - permalink
    Raydavis
    Hi! My wife respnded to you about the fatique a couple days back and she is concerned about my future symtoms. My fatique hasn't been good. She would like to stay in touch. Thanks Ray and Karla
  5. lgaudin
    10-26-2009 09:27 PM - permalink
    lgaudin
    Thanks, I love the lyrics, very fitting. If you ever need someone to talk to please keep in touch. It is a horrible disease and loved ones really need support.
    My email address is: lgaudin@shaw.ca
  6. sadiemae
    10-17-2009 10:02 AM - permalink
    sadiemae
    good morning we are moved in and we love it. got a new bed, les got a 60 inch tv for his birthday, and the weather is beauriful. high today should be 77. have a good weekend. we have a meeting on tues about getting les up to 100 per cent on the VA. Let me know what vet regional center you are using and i will ask my rep who you need to contact. luv and hugs, lori
  7. luvmyhubby
    10-13-2009 07:11 PM - permalink
    luvmyhubby
    I am really sorry that I don't know how to use this feature. I did read your message and answered you' but I think it stayed in my box. Yes, we are going to be staying in Disney Thanksgiving week if all goes as planned! I would like to help with some suggestions of must see and does if you want. How old is your little one?
  8. sadiemae
    10-02-2009 10:40 AM - permalink
    sadiemae
    Kay Marie, I do not know how to respond to a pm. We are still in process too, but he had 5 months 23 days, 90 days were consecutive, but was never active duty other than training. Call me and I will tell you how I started the process. It looks like it 100 per cent guaranteed for us according to the guy at the reno office. my name is Lori. Please call, I will call you back if longdistance is a problem, as I have unlimited
  9. sadiemae
    09-29-2009 10:38 PM - permalink
    sadiemae
    Hi My husband was diagnosed sept 09 symptoms started about 2 to 3 yrs ago, so we are scared. He is 44 I am 51, we are both unemployed, no insurance(but getting great support from ALS clinic) and have 2 teenagers 17 and 15. He may (WILL) get VA benefits, Just having a hard time surviving until our benefits kick in. SSDI should be retroactive from Jan 09, Give us a prayer!
  10. sadiemae
    09-27-2009 11:50 PM - permalink
    sadiemae
    hi nice to meet you kind of busy now, getting kids and dog to bed. talk soon

About Me

  • About indigosd
    City
    RURAL
    State or Province
    oz
    Country
    oz
    How has ALS/MND impacted you?
    WEB died 30 Dec 2010
    When were you diagnosed?
    07/2009

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  • Last Activity: 12-30-2011 05:28 AM
  • Join Date: 06-22-2009

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