Hjlee is on a distinguished road

Hjlee Hjlee is offline

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Showing Visitor Messages 1 to 5 of 5
  1. Narrowminded
    10-17-2018 03:47 PM - permalink
    Hi Jennifer, the way Brian spoke around his trach was with the cuff down. That let the air go around the trach and past his vocal chords. The trilogy vent can compensate for the leak created by having the cuff down. I hope that helps

  2. patrick123
    10-16-2018 08:31 AM - permalink
    Hi Jennifer,
    I'm on my trach only when I sleep or feel very fatigued. I got trached because I stop breathing when I sleep. If you are not on the vent. You can still speak. When you the procedure done you will get a speech devise attaches to the inner cannula it allows the air to stop going through the vent. When you want speak. I'm on tube feeding, but I do enjoy ice cream on occasion. Being was a planned procedure. I didn't want an emergency situation. You recovery is much better. My stay was only 10 days. Respiratory therapist will teach you everything you need to know about care. They won't discharge your mom without teaching you everything you need to know. I hope this helps. If you have any question please feel free to message me.
  3. alab
    09-26-2017 07:03 PM - permalink
    You and your mother have been in my yhoughts today.
  4. GregK
    09-07-2017 09:29 PM - permalink
    Did my post have what you needed?
  5. GregK
    09-06-2017 07:26 PM - permalink
    Yep, as detailed here: http://www.alsforums.com/forum/als-research-news/31948-cbd-thc-etc-dosage.html

    post #18, if I recall...

About Me

  • About Hjlee
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    San jose
    State or Province


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  • Last Activity: 02-16-2019 08:24 PM
  • Join Date: 08-04-2017

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