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  1. Healthy1
    03-16-2013 06:01 PM - permalink
    Healthy1
    Thanks Wright
  2. wright
    03-16-2013 03:37 PM - permalink
    wright
    No it can't. That's all you're getting from me
  3. wright
    11-05-2012 08:54 PM - permalink
    wright
    NO, that's not possible. Yes, I was scared at one time . . . but unlike you . . . I had muscle weakness and two dirty EMG's. I then listened to my neuro and was done with it. This is the last time I answer your questions. You've worn-out your welcome. I'm done.
  4. wright
    10-29-2012 12:15 PM - permalink
    wright
    You do not have ALS. That has been my opinion . . . is my opinion . . . and will always be my opinion given your story.
  5. wright
    10-21-2012 08:30 PM - permalink
    wright
    NO, it's not bulbar-onset. That person with the 5 clean EMG's had upper motor neuron signs . . . YOU DON'T. That's it!
  6. wright
    10-04-2012 07:00 PM - permalink
    wright
    Large motor units is a sign of a healed nerve that was damaged at some point in your life. It could have happened 6 months ago or 6 years ago or whenever. If that is all that was found, your EMG is normal. Now are you going to give this ALS nonsense a rest? Do yourself a favor and get some help for anxiety and get yourself in a better place for your sake and the sake of your family.
  7. sadiemae
    07-29-2012 08:26 PM - permalink
    sadiemae
    If you truely have ALS with bulbar onset, the average lifespan is less than 1 year. So the onset of other signs on EMG would be quick. But, frankly, there would be other EMG changes in other muscle groups. People would notice the drooling, difficulty with chewing and swallowing and would have changed their diet to soft so they could chew. There would be episodes of choking-like occurances due to poor swallowing etc. The neurologist usually would have a feel for ALS upon the clincal examination.
    It would very, very unlikely that you would have only selective bulbar signs, without EMG findings and have ALS. In fact, you would probably be the first.

    I hope I answered your question.

    Sincerely,

    CCF Neuro MD
    tewest99
    Saint


    Posts: 886
    Joined: Tue February 7th, 2006 1:10 am
  8. sadiemae
    07-29-2012 08:19 PM - permalink
    sadiemae
    Here is something I found on aboutbfs

    1. How long after bublar onset als would emg show up. In limbs, throat area's etc. What would be the longest time in interval months that you would think that we all could feel safe in assuming that the chances are that our twitching is not als. If there a time frame in which nuero's go by? For instance , a year, six months etc. I know cases are different in all people however, I would like an opinion on what you all believe would be the longest period of time that bublar onset could be taking place before denervations presents itself in other limbs? Thanks for you anticipated answer and I am sorry if I sound full of anxiety, but I am stressed and am doeing the best I can to deal with this fear.
  9. brooksea
    07-29-2012 08:00 PM - permalink
    brooksea
    Yes, the fasciculations never go away once they start, until the muscle is totally atrophied and all you see is skin and bone. For example, my husband's ALS started in the bulbar area and the left hand simultaneously (at least that is what we noticed). Weakness in his left hand made him unable to keep hold of a stylus to use his palm pilot. He did not have fasciculations at that time. They came later.
  10. sadiemae
    07-29-2012 07:49 PM - permalink
    sadiemae
    It would have shown up on the EMG if your ALS had progressed to the point of atrophy. And if it was ALS caused atrophy you would be unable to open a bottle of water. Or unable to write or hold a pencil. The hand wouldn't just be weak, It would be dead and paralyzed.

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