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gooseberry gooseberry is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 60
  1. kitkat
    07-13-2017 04:58 PM - permalink
    We are taking a trip to Ireland, from Minnesota. I've read one of your posts about flying, but still have a couple questions. My PALS has no use of his arms or hands, and his legs are getting very weak. We'll be bringing his collapsible wheelchair on the trip. Once on the plane, he probably won't be able to get around during the long flight. It's an overnight, and I was thinking about reserving one of those specialty seat/beds for each of us...thinking it would be easier for him. We already have our flights, but was thinking about what would be easier - regular seats or the "beds". Do you have any experience with those? Do you recommend a condom catheter? Still so many questions, and we leave in a month! Thank you!
  2. DaChief
    04-06-2017 07:53 AM - permalink
    Steph, do you know the name and number of the person at the VA there that does the SAH program and in-home

  3. Angiegal
    03-22-2017 10:41 PM - permalink
    Thanks so much!!
  4. Angiegal
    03-17-2017 08:38 PM - permalink
    Hi Sorry to bother you. I was backpedalling thru some of the boards.... your son is autistic? Mine too. Matthew just turned 23. We did his dinner that night at East Side Mario's.... my question to you is, how did you tell your son about the ALS?
    I still haven't told him. I still don't know if he'd even understand....
    If you don't want to talk about it, i get it.
    Thanks for reading. Hope to hear from you soon.

  5. Barbie
    03-01-2017 04:00 PM - permalink
    <3 <3 hi sister
  6. tripete
    01-01-2017 05:35 AM - permalink
    Thank you Steph.
  7. johno6001
    08-22-2016 07:54 AM - permalink
    Not sure how to PM, I'm a Vet with ALS. I currently use the VA Birmingham and am very happy. Here is my info: John O'Hara.
  8. affected
    06-27-2016 02:03 PM - permalink
    Sending you a hug Steph, been thinking of ya xxxx
  9. Bribri
    04-05-2016 09:16 AM - permalink
    Hey gooseberry I don't k ow if you've read my story or not but I've seen where your husband has respiratory onset which is what I'm afraid I might have if you get the time could you read my thread? Thank you in advance.
  10. skipper66
    03-04-2016 02:06 AM - permalink
    Sending you a huge hug. I am so sorry. Kim

About Me

  • About gooseberry
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
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    Life is too short, enjoy it!
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  • Last Activity: 01-19-2019 09:13 PM
  • Join Date: 07-02-2014


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