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Visitor Messages

Showing Visitor Messages 1 to 10 of 61
  1. Rogers
    11-26-2017 09:49 AM - permalink
    Rogers
    Oke, i am already checkt on all reumatic diseases and MS but nothing ruled out, only an elevated ana 1:60 not specific for any reumatic disease. Thanks for your answer
  2. kitkat
    07-13-2017 05:58 PM - permalink
    kitkat
    We are taking a trip to Ireland, from Minnesota. I've read one of your posts about flying, but still have a couple questions. My PALS has no use of his arms or hands, and his legs are getting very weak. We'll be bringing his collapsible wheelchair on the trip. Once on the plane, he probably won't be able to get around during the long flight. It's an overnight, and I was thinking about reserving one of those specialty seat/beds for each of us...thinking it would be easier for him. We already have our flights, but was thinking about what would be easier - regular seats or the "beds". Do you have any experience with those? Do you recommend a condom catheter? Still so many questions, and we leave in a month! Thank you!
  3. DaChief
    04-06-2017 08:53 AM - permalink
    DaChief
    Steph, do you know the name and number of the person at the VA there that does the SAH program and in-home
    Eval?

    Bruce
  4. Angiegal
    03-22-2017 11:41 PM - permalink
    Angiegal
    Thanks so much!!
  5. Angiegal
    03-17-2017 09:38 PM - permalink
    Angiegal
    Gooseberry?
    Hi Sorry to bother you. I was backpedalling thru some of the boards.... your son is autistic? Mine too. Matthew just turned 23. We did his dinner that night at East Side Mario's.... my question to you is, how did you tell your son about the ALS?
    I still haven't told him. I still don't know if he'd even understand....
    If you don't want to talk about it, i get it.
    Thanks for reading. Hope to hear from you soon.

    Angie
  6. Barbie
    03-01-2017 05:00 PM - permalink
    Barbie
    <3 <3 hi sister
  7. tripete
    01-01-2017 06:35 AM - permalink
    tripete
    Thank you Steph.
  8. johno6001
    08-22-2016 08:54 AM - permalink
    johno6001
    Not sure how to PM, I'm a Vet with ALS. I currently use the VA Birmingham and am very happy. Here is my info: John O'Hara. Johno6001@yahoo.com.
  9. affected
    06-27-2016 03:03 PM - permalink
    affected
    Sending you a hug Steph, been thinking of ya xxxx
  10. Bribri
    04-05-2016 10:16 AM - permalink
    Bribri
    Hey gooseberry I don't k ow if you've read my story or not but I've seen where your husband has respiratory onset which is what I'm afraid I might have if you get the time could you read my thread? Thank you in advance.

About Me

  • About gooseberry
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
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