Kay Marie, I am quite good with computer but so far, I have not been able to locate the link. I have to leave the house shortly. I will look for it again. Thank you. It is so good to find friends here.
Gertrude, As soon as you have made 20 posts more options will open up for you on the forum such as private messaging. Did you see that I sent you a friend request? See up at the top where it say Welcome ghii [upper right above the blue bar] If you put your mouse on the highlighted areas it will show you how to accept a friend etc. Love your posts and I replied to your Fiscus one this morning. What country are you from if I may ask? hugs, Kay Marie
Kay Marie, I was going to run from this site when I saw your posts. I am not very good with this site, how it works.
I cry reading posts of Als though the people I read about are so brave. Just now, I thought oh no, I cannot take this. I better exit and saw your posts. I am so sorry your husband has it. Mine is around 80 years old. He has led a good long life, his children are all grown yet I find it so hard. I cannot imagine anyone having it with young children. It must be so painful.
Thanks. I will not run.
I internalize it too much. I think I should come to a grip with it, face it - the horror of it, as slowly my husband could get robbed of the ability to eat, talk or breathe on his own. Those three I find so terrifying. Monsters, demons, when we confront them become less terrifying. Instead of running, I should read and learn from those who have it and posts here. But I will do it later in the day. I could then go to bed soon after. Emotions are so draining.
Welcome to the forum! I sent you a friend request! If you click on my posting name you can see me. My husband has Bulbar Onset ALS and we have a 13 year old son still at home. hugs from one CALS to another. Kay Marie