dvjcool is on a distinguished road

dvjcool dvjcool is offline

New Member (Say Hi)

Visitor Messages

Showing Visitor Messages 1 to 1 of 1
  1. dvjcool
    06-13-2016 01:50 AM - permalink
    My Dad has been recently diagnosed with MND ( its ben a little more than a month). As per The Dr. it is currently effecting lower Motor Neurons Only. As advised, we carried out EMG. NCV and all blood tests. Only acute Vitamin D deficiency was observed. All other tests were normal. NCV and EMG showed clear signs on Lower Motor Neuron damage in both hands and legs. However The physical affect is limited to both hands only and no affect in legs.
    regular dose of vitamin D was started and we were giving him coconut oil massage (its been over a month).
    we have observed improvement in muscle strength in both hands and also thumb movement.
    Earlier he was unable to hold spoon using thumb but now has no problem.
    Also the grip of both hand has considerably improved.
    We discussed the case with neurophysician but he dismissed the improvement saying it is a normal process.

    This was really heartbreaking. Should we hope something good may happen or is it a false hope. Please suggest.

About Me

  • About dvjcool
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province


Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 08-18-2017 06:47 AM
  • Join Date: 06-13-2016

All times are GMT -5. The time now is 01:30 PM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016