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Dusty7 Dusty7 is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 80
  1. Georgi
    06-30-2016 10:13 PM - permalink
    Georgi
    I have a question does plot hand syndrome start with weakness or atrophy? You seem to know I've read some of your older posts on the issue?
  2. Cpeters
    12-03-2015 09:13 PM - permalink
    Cpeters
    Dusty do you see where I commented back to you?
  3. Cpeters
    11-13-2015 01:48 PM - permalink
    Cpeters
    Dusty I answered you're questions that you asked me
  4. Dusty7
    11-13-2015 01:22 PM - permalink
    Dusty7
    Sorry, it's been a couple of busy weeks.

    Questions?
  5. Cpeters
    11-11-2015 07:39 PM - permalink
    Cpeters
    Dusty I'm sorry to keep bothering you but will you please respond back
  6. Cpeters
    11-07-2015 10:08 AM - permalink
    Cpeters
    Dusty are you there
  7. skipper66
    11-02-2015 10:49 PM - permalink
    skipper66
    Howdy! Just stopped by to say Hi! My dad is hanging in there. We had a nice family visit with him over the Columbus day weekend. He got to see all of his six grandkids together in one place. Which is a rarity now with everyone living in different places. Take care, Kim
  8. Cpeters
    10-31-2015 08:15 PM - permalink
    Cpeters
    It's like my fingers don't want to do what I want them to do, like trying to play a piano my fingers kinda pause when trying to hit different notes
  9. Cpeters
    10-31-2015 08:11 PM - permalink
    Cpeters
    Like when I lift my foot up and lay it back down it has a tremble-jerky sensation with it and that's the way everything is when I move anything
  10. Cpeters
    10-31-2015 08:09 PM - permalink
    Cpeters
    I can walk on my toes and heels I can jump I can open a a can and a bottle and a locked door, but it's it's like every thing is jumpy and jerky when I attempt to use anything, like when I walk my legs feel floppy and messed up they feel like they are drifting or something I feel like my legs and arms are not connected to me so it's like I don't no where my legs are when I walk or my arms m, it's like I don't have control over anything, my tongue is stiff and jerky

About Me

  • About Dusty7
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    08/2013
    City
    Orlando
    State or Province
    FL
    Country
    US

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  • Last Activity: 03-12-2017 01:50 PM
  • Join Date: 08-03-2013

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