dragonflydi's Profile Picture
dragonflydi is on a distinguished road

dragonflydi dragonflydi is offline

New Member

Visitor Messages

Showing Visitor Messages 1 to 5 of 5
  1. BillMiller823
    07-10-2014 11:11 PM - permalink
    BillMiller823
    Hi Diane,

    Like your husband, I am also a trilogy 100 ventilator user, and I found your posts about how to attach it to a power wheelchair with straps on this thread:

    http://www.alsforums.com/forum/tips-tricks-gadgets/20680-trilogy-100-vent-tray-transport.html

    I wanted to reply to the thread, but it's closed. I was wondering what straps, and/or what case you use to attach it, and if you might be able to share a couple of pictures?

    I ask because the trilogy case I received is like a closed case, i.e. there's no place for the circuit to go out of the side, etc. So I am struggling to figure out how you and others have attached your trilogy ventilators (and struggling to figure out how to attach mine).

    I hope it's okay to message you as I do not have ALS, but am paralyzed from the neck down and ventilator dependent due to a spinal cord injury.

    Sincerely,

    Bill Miller :-)
    About me: http://www.lookmomnohands.net/About_Bill.htm
  2. sh789
    08-02-2013 09:56 PM - permalink
    sh789
    Hi Diane, My mother in law passed away this morning. I honestly can't believe how quick it happened.
  3. tomby
    11-08-2012 02:35 PM - permalink
    tomby
    Just wanted to check in on you. How are you holding up?
    Tom
  4. tomby
    05-17-2012 04:46 PM - permalink
    tomby
    My son was in fredonia a few weeks ago visiting friends at SUNY. Has the parking ticket to prove it.
    We're just over in Syracuse fighting the same battles if I can be of any help
    Tom
  5. dragonflydi
    04-21-2012 05:02 PM - permalink
    dragonflydi
    I'm not exactly new, but I'm saying "hi" for the first time. I have been reading on this site for quite a while and I just want to say that I have drawn great strength from so many of the posts that I've read. My husband's ALS symptoms started 5 1/2 years ago and, like so many of you, I tried to do it all alone for way too long.
    The nearest support group is over an hour away so finding this site has been a real blessing. He is now in a power chair all day and he uses an external vent machine and a nebulizer to help him breathe. A year and a half ago my husband agreed that it was time to get some help so we now have an aide for 2 hours 3 mornings a week. I have two part-time jobs, which would be impossible to keep without our aide and the help of his sister. So I just wanted to say "thank you" to all of you for keeping me strong and helping me to be a better caregiver for my wonderful, brave husband.

About Me

  • About dragonflydi
    What's your relationship with ALS/MND?
    I am a caregiver for someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Fredonia
    State or Province
    NY
    Country
    US
    Occupation
    I teach French and Spanish at SUNY Fredonia and dance and Pilates at the local gym.
    Interests
    Reading, music, cooking, speaking other languages.

Statistics

Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 12-07-2014 02:04 PM
  • Join Date: 10-19-2010

Friends

Showing Friends 1 to 3 of 3

All times are GMT -5. The time now is 07:05 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016