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  1. BillMiller823
    07-10-2014 10:11 PM - permalink
    Hi Diane,

    Like your husband, I am also a trilogy 100 ventilator user, and I found your posts about how to attach it to a power wheelchair with straps on this thread:


    I wanted to reply to the thread, but it's closed. I was wondering what straps, and/or what case you use to attach it, and if you might be able to share a couple of pictures?

    I ask because the trilogy case I received is like a closed case, i.e. there's no place for the circuit to go out of the side, etc. So I am struggling to figure out how you and others have attached your trilogy ventilators (and struggling to figure out how to attach mine).

    I hope it's okay to message you as I do not have ALS, but am paralyzed from the neck down and ventilator dependent due to a spinal cord injury.


    Bill Miller :-)
    About me: http://www.lookmomnohands.net/About_Bill.htm
  2. sh789
    08-02-2013 08:56 PM - permalink
    Hi Diane, My mother in law passed away this morning. I honestly can't believe how quick it happened.
  3. tomby
    11-08-2012 01:35 PM - permalink
    Just wanted to check in on you. How are you holding up?
  4. tomby
    05-17-2012 03:46 PM - permalink
    My son was in fredonia a few weeks ago visiting friends at SUNY. Has the parking ticket to prove it.
    We're just over in Syracuse fighting the same battles if I can be of any help
  5. dragonflydi
    04-21-2012 04:02 PM - permalink
    I'm not exactly new, but I'm saying "hi" for the first time. I have been reading on this site for quite a while and I just want to say that I have drawn great strength from so many of the posts that I've read. My husband's ALS symptoms started 5 1/2 years ago and, like so many of you, I tried to do it all alone for way too long.
    The nearest support group is over an hour away so finding this site has been a real blessing. He is now in a power chair all day and he uses an external vent machine and a nebulizer to help him breathe. A year and a half ago my husband agreed that it was time to get some help so we now have an aide for 2 hours 3 mornings a week. I have two part-time jobs, which would be impossible to keep without our aide and the help of his sister. So I just wanted to say "thank you" to all of you for keeping me strong and helping me to be a better caregiver for my wonderful, brave husband.

About Me

  • About dragonflydi
    What's your relationship with ALS/MND?
    I am a caregiver for someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    I teach French and Spanish at SUNY Fredonia and dance and Pilates at the local gym.
    Reading, music, cooking, speaking other languages.


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  • Last Activity: 12-07-2014 01:04 PM
  • Join Date: 10-19-2010


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