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Visitor Messages

Showing Visitor Messages 1 to 3 of 3
  1. tomby
    11-08-2012 01:35 PM - permalink
    tomby
    Just wanted to check in on you. How are you holding up?
    Tom
  2. tomby
    05-17-2012 03:46 PM - permalink
    tomby
    My son was in fredonia a few weeks ago visiting friends at SUNY. Has the parking ticket to prove it.
    We're just over in Syracuse fighting the same battles if I can be of any help
    Tom
  3. dragonflydi
    04-21-2012 04:02 PM - permalink
    dragonflydi
    I'm not exactly new, but I'm saying "hi" for the first time. I have been reading on this site for quite a while and I just want to say that I have drawn great strength from so many of the posts that I've read. My husband's ALS symptoms started 5 1/2 years ago and, like so many of you, I tried to do it all alone for way too long.
    The nearest support group is over an hour away so finding this site has been a real blessing. He is now in a power chair all day and he uses an external vent machine and a nebulizer to help him breathe. A year and a half ago my husband agreed that it was time to get some help so we now have an aide for 2 hours 3 mornings a week. I have two part-time jobs, which would be impossible to keep without our aide and the help of his sister. So I just wanted to say "thank you" to all of you for keeping me strong and helping me to be a better caregiver for my wonderful, brave husband.

About Me

  • About dragonflydi
    City
    Fredonia
    State or Province
    NY
    Country
    US
    How has ALS/MND impacted you?
    I am a caregiver for someone with ALS/MND
    When were you diagnosed?
    00/0000
    Occupation
    I teach French and Spanish at SUNY Fredonia and dance and Pilates at the local gym.
    Interests
    Reading, music, cooking, speaking other languages.

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General Information
  • Last Activity: 05-12-2013 09:22 PM
  • Join Date: 10-19-2010

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