crystalkk is on a distinguished road

crystalkk crystalkk is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 83
  1. SeenLyndaLately
    11-21-2012 10:00 PM - permalink
    SeenLyndaLately
    Hi Crystalkk,
    On and off for years I've been searching for answers and then today I found your post
    "losing use of your hands"
    I nearly cried because what I was reading is happening to me right down to the facial twitching :( but I also felt so much relief because these symptoms are real and it is a real condition.
    It was a long ago when you posted this topic but I do hope you are doing well and life is being good to you and if you do log on again. Thank you :)
  2. ltbeauti
    09-09-2012 01:09 AM - permalink
    ltbeauti
    Hi,
    Just wanted to ask you about your progression and how it started?
    I had mainly bulbar symptoms for years before balance problems began.
  3. mare
    09-23-2011 10:34 AM - permalink
    mare
    Hi again- how are things going? Any new answers/ leads? All the best- Marianne
  4. mare
    11-29-2010 09:52 PM - permalink
    mare
    Hi, Crystal- Haven't seen you for awhile. How are you & how are things going? Take care- Marianne
  5. lovelily
    07-21-2010 11:15 PM - permalink
    lovelily
    Hi crystal....I left a message on my visitor page for you. Sleep tight! Lovelily
  6. JeffP
    06-19-2010 10:16 PM - permalink
    JeffP
    hi crystalkk thank you for liking my tattoo people kept saying you werent going to do it i proved them wrong i have full sleve tattoos on both arms but still some area to do more .its funny though the looks you get from people like your trash or no good .well i hope all is ok with you tell me alittle about yourself and your dx .i have bulbar als but it has spread throughout my entire body but i walk workout can still work to a limited amoynt of hrs per day well take car jeff
  7. mare
    06-01-2010 05:15 PM - permalink
    mare
    Thanks, Crystal. Babies are great! I'm not responding on my thread because I want it to quiet down, in light of Kay Marie's tragic loss. But, I do appreciate your sentiments! Marianne
  8. irismarie
    05-17-2010 09:46 PM - permalink
    irismarie
    thank you, sweet friend
    Your kids are really really sweet
    how are the tests/dx going?
    Love to you and yours
  9. Chief
    03-02-2010 02:25 PM - permalink
    Chief
    Such a beautiful family.......our prayers are with you.
  10. awieleba
    03-01-2010 09:55 AM - permalink
    awieleba
    bachelor tonight! and let me know about what I asked you, ok?

About Me

  • About crystalkk
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
    City
    philadelphia
    State or Province
    pennsylvania
    Country
    united states
    Biography
    39yr old mother of 4 year old and 8 year old
  • Signature
    Crystal
    ------------
    Undxed, slowly progressive symtoms

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  • Last Activity: 03-25-2013 05:23 PM
  • Join Date: 09-11-2007

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