Compass Rose is on a distinguished road

Compass Rose Compass Rose is offline


Visitor Messages

Showing Visitor Messages 1 to 6 of 6
  1. hangingon1
    10-26-2012 03:03 PM - permalink
    Dear Rose,
    I hope you are getting better after your loss. You know my wife died shortly after your husband did. Please stay in touch and let's pray for each others peace.
    Your Friend
  2. notme
    10-02-2012 11:01 AM - permalink

    Thank you very much. We were denied our foodstamps, so every little bit helps right now. Very much appreciated.

  3. ottawa girl
    08-25-2012 07:39 PM - permalink
    ottawa girl
    Hi Rose,

    if your brother lives in Canada- that's great Medicare wise. Phew! LTD is also excellent - if I can be of help - do let me know, I'm in Ottawa. ( my best friend lives in Mukilteo - so I often travel to Seattle too- small world). Anyway - you'll note that I had 1st Neuro appointment in April and 2nd in August - so 4 months later. I think it's protocol for early stage patients. So don't hesitate to ask for anything I would be happy to help out. Also, pls keep in mind, there are ALS offices in lots of small centres who have wonderful volunteers.
  4. ottawa girl
    07-14-2012 11:46 AM - permalink
    ottawa girl

    Checking in - are you Ok?
  5. dberbicegirl
    06-28-2012 06:16 AM - permalink
    Hi Rose:
    I am so sorry to hear about your brother, he is a couple of years younger than my brother who was also diagnosed with the "beast"of all diseases. I think I can identify with how you feel- sad and helpless. Unfortunately the progression with my brother is swift, I am hoping he can join the forum to vent. He was in the denial stage, and now seems very angry and speechless. His speech has gotten worse so he speaks very little. I just keep praying that gets into the acceptance stage and makes the best of his time here on earth. I will be praying for you and your brother and Hope for the best on this journey we are on.

  6. sadiemae
    06-28-2012 02:39 AM - permalink
    He is the same age as my husband. You will find out very quickly that everyone progresses differently. Is he a Veteran by chance. Also, is he still working. To respond on my visitor page, just click on my name and write on my page. After you have a certain amount of posts, you will be able to do Private Messaging. I will Send you a couple links to some great info tomorrow. Also, remember that this is a public forum, so anyone can come here and read posts. Facebook has a few good groups that are by invite only. HUGS. Lori

About Me

  • About Compass Rose
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    Journalist, writer, sailor, bon vivant
    Website founder, writer, editor
    Cooking, talks with good friends, roaming around the world, exploring other cultures, reading


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  • Last Activity: 10-19-2014 11:50 PM
  • Join Date: 06-20-2012


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