Cherise77 is on a distinguished road

Cherise77 Cherise77 is offline

New Member

Visitor Messages

Showing Visitor Messages 1 to 7 of 7
  1. karzy81
    09-23-2018 10:06 PM - permalink
    karzy81
    Hi Cherise,

    We were told in September by a friend who is a neurologist that he was 99% sure my dad had Als. He has mostly lower body symptoms with the right leg being worse. He has some weakness in his upper body but other than that we havenít seen much change other than that. He has widespread fasiculations pretty much all over his body. Crossing my fingers he has a slow progression
  2. Tedstehr
    08-14-2018 12:38 PM - permalink
    Tedstehr
    Can you please phone me Cherise? I have some he could use immediately. (removed and sent via pm by mod for privacy)
  3. Tedstehr
    08-14-2018 03:24 AM - permalink
    Tedstehr
    I just saw this message Cherise. I will respond tomorrow. Were you able to get Edaravone?
  4. ShiftKicker
    07-18-2018 02:08 AM - permalink
    ♥ ShiftKicker
    Absolutely no worries! Any time.
  5. ShiftKicker
    07-18-2018 12:53 AM - permalink
    ♥ ShiftKicker
    Scooped your email from the publicly viewable visitor page for Firefighter and sent it to him privately.

    ~Fiona
  6. Bestfriendstilltheend
    06-27-2018 12:21 PM - permalink
    Bestfriendstilltheend
    Hello,

    If you'd like to research another route, Edaravone has been wonderful for my husband. It gives him energy, an increased appetite and has slowed his progression IMHO.

    Please let me know if I can help in any way.
  7. Bestfriendstilltheend
    06-25-2018 09:40 AM - permalink
    Bestfriendstilltheend
    Hi Cherise,
    My husband has not been on the trial since March 28th. I believe if he had continued on the clinical trial, he would have committed suicide, as the Pimozide completely changed him and made him have suicidal ideation.. No joke.

    The closest place to you for your dad to try the Pimozide clinical trial is Calgary (I think).

About Me

  • About Cherise77
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    07/2018
    City
    Vancouver
    State or Province
    BC
    Country
    CA

Statistics

Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 11-09-2018 05:11 PM
  • Join Date: 06-18-2018

All times are GMT -5. The time now is 12:46 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016