Cherise77 is on a distinguished road

Cherise77 Cherise77 is offline

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Showing Visitor Messages 1 to 8 of 8
  1. karzy81
    02-06-2019 08:38 PM - permalink
    Hi Cherise. I am still figuring out this site. But I don’t think it’s very user friendly. The worrying and anxiety can definitely speed up the progression in my opinion. But I’m no doctor.
  2. karzy81
    09-23-2018 09:06 PM - permalink
    Hi Cherise,

    We were told in September by a friend who is a neurologist that he was 99% sure my dad had Als. He has mostly lower body symptoms with the right leg being worse. He has some weakness in his upper body but other than that we havenít seen much change other than that. He has widespread fasiculations pretty much all over his body. Crossing my fingers he has a slow progression
  3. Tedstehr
    08-14-2018 11:38 AM - permalink
    Can you please phone me Cherise? I have some he could use immediately. (removed and sent via pm by mod for privacy)
  4. Tedstehr
    08-14-2018 02:24 AM - permalink
    I just saw this message Cherise. I will respond tomorrow. Were you able to get Edaravone?
  5. ShiftKicker
    07-18-2018 01:08 AM - permalink
    ♥ ShiftKicker
    Absolutely no worries! Any time.
  6. ShiftKicker
    07-17-2018 11:53 PM - permalink
    ♥ ShiftKicker
    Scooped your email from the publicly viewable visitor page for Firefighter and sent it to him privately.

  7. Bestfriendstilltheend
    06-27-2018 11:21 AM - permalink

    If you'd like to research another route, Edaravone has been wonderful for my husband. It gives him energy, an increased appetite and has slowed his progression IMHO.

    Please let me know if I can help in any way.
  8. Bestfriendstilltheend
    06-25-2018 08:40 AM - permalink
    Hi Cherise,
    My husband has not been on the trial since March 28th. I believe if he had continued on the clinical trial, he would have committed suicide, as the Pimozide completely changed him and made him have suicidal ideation.. No joke.

    The closest place to you for your dad to try the Pimozide clinical trial is Calgary (I think).

About Me

  • About Cherise77
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: 03-23-2019 02:40 PM
  • Join Date: 06-18-2018

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