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Visitor Messages

Showing Visitor Messages 1 to 10 of 95
  1. skipper66
    06-18-2017 05:09 PM - permalink
    Thinking of you Casey! Happy Father's day to you.
  2. skipper66
    11-23-2016 03:37 PM - permalink
    Happy Thankgiving Casey! You are in my thoughts and prayers. Kim
  3. skipper66
    07-24-2016 04:40 PM - permalink
    Hi Casey,
    I think and pray for you often. Hugs, Kim
  4. Scotiaspirit
    02-08-2016 01:43 PM - permalink
    Hello Casey. We are getting a blizzard warning with 40cm of snow expected in the Halifax-Dartmouth area of Nova Scotia. Had my first visit from an OT the other day, lots of recommendations; extra stair rails, bars on the shower tub surround, bar for lifting myself out of bed, walker in near future etc etc.

    Just six months ago, I could walk six km without having to rest too much, now I cannot walk 60 ft. without feeling bushed and cramped up, and with a cane of course. My voice is starting to get raspy, and jaw gets tired when chewing food. Swallowing and choking more often.

    I am getting sluggish and hope things will stabilize a bit, so I can at least get another summer to do some camping. Things are what they are and have to adjust and adapt to this plague of a disease. I tell my friends getting ALS is like winning a lottery of the very worst kind!

    Hope you are having a good day(s) and that all is well as possible for you. TTYL

  5. Scotiaspirit
    01-31-2016 09:46 PM - permalink
    Hello Casey. I was dx in November 2015. Limb Onset. Been dealing with drop foot R-Leg and it makes it very uncomfortable for getting around. I can still hobble with a single cane, but as my legs continue to weaken, a walker is not far off in the future for me. Still a bit in shock from the dx of ALS.

    I am in Nova Scotia. What part of Canada are you from? Our medical system/wait times are the worst I have ever seen it.

    How long have you been dealing with this terrible disease?

  6. skipper66
    10-26-2015 06:11 PM - permalink
    Hi Casey,
    Hope you are doing ok. My family and I went to Dallas to visit my dad over the Columbus Day weekend. It was a very quick trip but a very nice one. My dad can't really use his arms or legs for anything. He can still breathe well, swallow, and talk pretty well. He has to be fed and everything else with complete help. Take care my friend. I pray for you. Kim
  7. Green Queen
    07-17-2015 11:10 PM - permalink
    Green Queen
    G'day Casey
    I just read that you know lots about Toronto and Niagara Falls. I'm storing that info (probably in the part of my brain where I'll never find it again!) as my husband Wayne and I are planning a small trip with our kids. Maybe next year, more likely 2017. I would love to pick your brain. Ok let's be honest, mainly about ice hockey! But also some awesome things to see that aren't are accessible but not quite so mainstream.
    I hope you are traveling well.
    God bless, Janelle x
  8. skipper66
    03-12-2015 04:07 PM - permalink
    Hi Casey,
    Saw that you had your light on. How are you doing? My dad is hanging in there but he is losing more and more mobility. Luckily, in his situation though he can still eat ok. Even though someone has started to feed him at times and he is able to talk most of the time. They are hooking up his eye gaze thing or whatever you exactly call it this week. They started some training on it awhile ago. The VA has been great to him. Take care, Kim
  9. skipper66
    12-26-2014 05:31 AM - permalink
    Merry Christmas Casey! Haven't see you on for awhile. I'm hoping you are doing ok. Hugs, Kim
  10. skipper66
    11-26-2014 06:18 PM - permalink
    Hi Casey,
    Happy Thanksgiving to you! Kim

About Me

  • About CGARS
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    St. Catharines
    State or Province
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    If we don't believe in magic, there will never be any.


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  • Last Activity: 09-13-2018 05:43 PM
  • Join Date: 04-24-2012


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