CB1977 is on a distinguished road

CB1977 CB1977 is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 15
  1. Luke
    06-09-2012 12:37 PM - permalink
    Luke
    Looks like it's been a long time since you've been on this forum, but your experience sounds eerily similar to mine, so I was wondering if you've gotten any new information since your last update in 2010. Take care.
  2. NotKnowingSucks
    11-29-2011 04:22 PM - permalink
    NotKnowingSucks
    Hope your doing ok, you ever get a diagnosis?
  3. rose
    11-27-2011 09:46 AM - permalink
    rose
    Hey, Drop in and let us know how you're getting along. Merry Christmas :)
  4. awieleba
    02-02-2010 06:28 PM - permalink
    awieleba
    Hey there,
    Are you still taking those supplements for metabolic issues? I thought I read that was you, if so tell me what you are taking or doing. I have a few things I may start doing as far as supplements and a heavy duty 7 day detox and MAYBE hyperbaric oxygen chamber therapy along with chelation. It cant hurt anything but my pocket book, and since I dont have a dx, maybe it will help or SLOW this down. I know it doesnt cure als but I dont have that dx. I am going to see what my als doc says on the 19th after my emg and clinical.
  5. awieleba
    11-30-2009 07:18 PM - permalink
    awieleba
    ditto, ditto.....same boat.
    Have a wonderful christmas!
  6. awieleba
    10-31-2009 07:25 PM - permalink
    awieleba
    Hey~
    I get that elbow thing as well. Ihad some minor twitching there, not consistent. The area does seem thinner. The bone that runs on the outer part of forearm is more pronounced as well, so laying my arm on the car window or table is a bother as well as elbow. My limbs fall asleep very easy as well. Still no dx or clue.
    apri;l
  7. indigosd
    08-15-2009 02:30 PM - permalink
    indigosd
    hmmmm...it is hard to tell what you are showing on your hand but it does somewhat resemble my husband's hands and he has Dupuytrens Disease. Here is a link that is informative.
  8. miss91
    08-12-2009 01:44 PM - permalink
    miss91
    Hi again - your message inbox is full! You can't receive any new messages until some are emptied out. Chatty me.
    Miss
  9. hopingforcure
    08-05-2009 02:02 PM - permalink
    hopingforcure
    I think you hand's look fine from the photo's, not what I have ever seen with ALS.. It is hard to really see in the photo, but does not look like atrophy to me
  10. rose
    07-11-2009 11:22 AM - permalink
    rose
    CB, I got your message and want to respond when I can devote the time to it. Its still pretty much chaos here, and a new puppy and s-l-o-w computer thrown in too. Keep your chin up, I know how frustrated you must feel. (hugs)

About Me

  • About CB1977
    What's your relationship with ALS/MND?
    undx at this time
    If diagnosed, when was the diagnosis?
    00/0000
    City
    columbus
    State or Province
    oh
    Country
    US

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  • Last Activity: 10-01-2010 06:03 PM
  • Join Date: 08-29-2008

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