Looks like it's been a long time since you've been on this forum, but your experience sounds eerily similar to mine, so I was wondering if you've gotten any new information since your last update in 2010. Take care.
Hey there,
Are you still taking those supplements for metabolic issues? I thought I read that was you, if so tell me what you are taking or doing. I have a few things I may start doing as far as supplements and a heavy duty 7 day detox and MAYBE hyperbaric oxygen chamber therapy along with chelation. It cant hurt anything but my pocket book, and since I dont have a dx, maybe it will help or SLOW this down. I know it doesnt cure als but I dont have that dx. I am going to see what my als doc says on the 19th after my emg and clinical.
Hey~
I get that elbow thing as well. Ihad some minor twitching there, not consistent. The area does seem thinner. The bone that runs on the outer part of forearm is more pronounced as well, so laying my arm on the car window or table is a bother as well as elbow. My limbs fall asleep very easy as well. Still no dx or clue.
apri;l
hmmmm...it is hard to tell what you are showing on your hand but it does somewhat resemble my husband's hands and he has Dupuytrens Disease. Here is a link that is informative.
I think you hand's look fine from the photo's, not what I have ever seen with ALS.. It is hard to really see in the photo, but does not look like atrophy to me
CB, I got your message and want to respond when I can devote the time to it. Its still pretty much chaos here, and a new puppy and s-l-o-w computer thrown in too. Keep your chin up, I know how frustrated you must feel. (hugs)
