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  1. dttruax
    07-03-2011 08:29 PM - permalink
    As a pals I have a few things i find difficulty excepting. I guess mainly is the fact that my independence is slipping away. I fear the day that I won't be able to do the simpliest things and rely on others to do them for me.I have great respect for you for caring for your father the way you did.
  2. butterfly.silverwings
    03-26-2011 03:10 AM - permalink
    my father had MND was diagnosed June 2007 - this disease only lasted 17 months for him.
    During this time I was his full time carer and support worker, social worker, planner. I was his everything and I am offering my knowledge to anyone else that needs it. I dont care if you just want to talk or even cry I am here for you.

About Me

  • About butterfly.silverwings
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: 08-26-2011 08:04 PM
  • Join Date: 03-26-2011

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