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Showing Visitor Messages 1 to 10 of 14
  1. joycecaroll
    12-18-2014 04:06 AM - permalink
    * worry * yours
  2. joycecaroll
    12-17-2014 12:00 PM - permalink

    I have tongue fasciculations too and they Woody me like hell. How are your's?
  3. Antologia
    05-20-2014 09:07 AM - permalink
    Hello Blizna,

    How are you doing? Do you still suffer excess saliva? Because I do to, and twitching as well for 1 year now... Hope you have some answers for me...

  4. writer07
    04-15-2013 06:30 PM - permalink

    I have body wide fasics for five months and have an emg this week. Also traveling burning pain, stiffness, buzzing. Did you get treated for chlamydia pneumonia? Are you cured of bfs?

    Thanks so much,
  5. bigguy
    10-19-2012 06:23 PM - permalink
    Hey Blizna, I saw that you've had BFS for 5 years and that back in 2009 you were also experiencing increased salivation. Currently, my saliva flow feels increased and I feel like i need to swallow more often to get rid of it and sometimes I wipe the corner of my mouth.

    Obviously you don't have PBP or any form of ALS, but did you ever find an explanation for your increased saliva flow? Did it go away on its own? Did a doctor tell you what the problem was? My fasciculations seem to be stress-induced and don't occur too often when I'm not focusing on ALS, so that's a relief, but this saliva flow isn't going away. Oddly, my salivary flow feels normal after eating a meal, but soon returns to excess amounts.

    Also, most sources (such as clinic websites and the ALSA page) say that increased saliva flow does not happen in ALS, but a few anecdotal reports that it does indeed happen are floating around on this site. Do you have any info regarding that?

    Thanks in advance,
  6. DallasTx
    03-20-2011 04:44 PM - permalink
    Hiii, im 26 old female. I m also having these twitches from 1- 1/2 now, i got bells palsy last year jan n gt fully recovered within 3 week n thn twiching frm my face spread to whole body and now after doing small stuffs my left land get tried or burning, i cant hold anythng for even 5 min, i am also worried but trying to relax. Also i had two clean EMG with mild cuppel tunnel Syndrome and Clean MRI, only ESR is bit high everytime. Just wan to ask r u ok now, so tht i can also hope this is nothing seroius ... tc
  7. twitching_person
    03-07-2011 09:16 PM - permalink
    On what book did you find that bfs patients can make fasciculations by poking thenars? can you post me a link?
  8. twitching_person
    03-04-2011 04:50 PM - permalink
    Man I am sory for me being so insistent about this, but the fact you got better makes me hope I will get better too. For how much time did you get these twitches after poking your thenars? Did this dissapear suddenly?
  9. twitching_person
    03-03-2011 12:24 PM - permalink
    do you still get twitching when you poke your thenars?
    I am taking carbamazepine for quite some time. The effect is lasting.
  10. twitching_person
    03-02-2011 07:40 PM - permalink
    Hi, I am having fasciculations for 15 months now. Very widespread. Very few on my calves, No cramps. 6 clean emgs.
    I can't get convinced I don't have ALS because I read things on net that are driving me crazy. I know you have 3 years twitching and you are even younger than me (I am 34 years old).
    I can induce fasciculations on my thenars by poking them with my index finger (more easy to invoke them on my left thenar than my right). I saw a video from you on youtube where you did the same as I can do all the time. For how much time did this happen to you?
    If i take 900 mg oxycarbazepine daily my spontaneus fasciculations almost stop, but I can still induce them by poking my thenar eminences.
    I am certain you are on the clean.

About Me

  • About Blizna
    What's your relationship with ALS/MND?
    Not certain of benign twitching due to anxiety
    If diagnosed, when was the diagnosis?
    State or Province
    University student


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