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bigmark1954 bigmark1954 is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 87
  1. chally
    02-24-2019 08:29 AM - permalink
    Trying to type by myself with knuckles

    How you do this by yourself mark?

    Can you get some club help?.

    Are you a vet? I hope so!

    4 years dx for me but last 2 months have put a hurting on me. Everything f*cking up!

    Can’t imagine doing this solo..

    When ridding my PWC. Down the street I close my eyes and dream I am on a bike.

    Here is my email so we don’t have to go through the forum.

    Like I said I am fading fast at this point,no time outs,no platues.

    Glad you got HARLEY, Think ya might need more help at some point

    Hang in there bro thanks for the good text. Later. Chally
  2. chally
    12-24-2018 07:25 AM - permalink
    Hey mark hope your doing ok over these last days of the year

    Thinking of you, I try to not give up,it’s over when it’s over

    Have a good day
  3. skipper66
    09-14-2018 01:51 PM - permalink
    Hi Mark,
    Hope you are doing as well as possible right now. I think of you often. I pop in on the forum every once in awhile. Since I wasn't my dad's caregiver I don't post much because I don't think I'd be that much help. I can't believe it will be 3 years in November since my dad died. Thanks to Hospice my dad did pass peacefully.
    Our twins are going to turn 21 on Sept. 19th. They have grown up too fast. Our youngest son is a freshman in high school now and is doing extremely well in school.
    Dalvin is still hanging in there but he says very weak. I message him from time to time and tell him I'm thinking of him. I know it's hard for him to type now. Just wanted to say Hello to you. I saw where you weren't on for awhile and I was concerned.
    Love and hugs, Kim 'Skipper".
  4. skipper66
    12-25-2017 02:31 PM - permalink
    Merry Christmas Mark.
  5. Mike in Maine
    12-19-2017 08:52 AM - permalink
    Mike in Maine
    You still around old man
  6. GregK
    06-19-2017 08:18 PM - permalink
    Ha! Thnx! And the same to you, belatedly!
  7. skipper66
    06-18-2017 04:08 PM - permalink
    Happy Father's day Mark. Hope you are doing ok. Hugs, Kim
  8. GregK
    12-25-2016 07:10 PM - permalink
    Well thanks, ya ol fart!

    You too!
  9. skipper66
    12-25-2016 04:40 PM - permalink
    Merry Christmas Mark! Hope you had a good day.
  10. GregK
    11-22-2016 06:24 PM - permalink
    You, too, ya scrounge mofo!

About Me

  • About bigmark1954
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    59 years old...3 sons..4 grandaugters
    Semi-retired Tattoo Artist... have had many retail businesses along the way
    motorcycles,trikes, boxing and MMA, and I collect watches.


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  • Last Activity: 03-28-2019 09:18 PM
  • Join Date: 01-31-2014


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