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azgirl azgirl is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 28
  1. azgirl
    01-09-2019 09:45 AM - permalink
    azgirl
    chally I thought you had feeding tube ll keep hydration by starting day with sixteen ounce water. This is repeated three times. We just put in food bag on slow drip. When I get dehydrated I feel awful!
  2. chally
    01-09-2019 07:11 AM - permalink
    chally
    Thanks Kay, I seem to have gone down hill pretty fast here lately.

    How do you stay hydrated? Not easy with difficult swallowing,water thickener sucks!

    Been doing mj for a while and it helps, started atavan recently

    Not sleeping is rough

    Again thanks. Love ya
    Chally
  3. chally
    01-07-2019 06:29 PM - permalink
    chally
    Hey Kay, here of late I have gone into a tailspin. Would you mind if I asked you a few questions
    .
    Do you use a feeding tube ? If so what kind of formula? I am not tolerating ensure type very well

    Thinking about using baby’s food thinned down. Do you use water thickener?

    I have a morning aide for a few hours, wanting to get a more full time helper day and night as this nightmare is wearing both my wife and I down

    How much do you have to pay your aide? Does Medicare or va help out?

    My swallowing and breathing have gone down big time.

    I can’t get comfortable ever. Going to ask Laurie about changing trilogy settings. Set now at 4/12

    Answer at your convenience and I Hope you are doing as best as you can today.

    Thanks. Love ya. Chally
  4. affected
    07-17-2017 02:46 PM - permalink
    affected
    Hopefully not much longer and you can get back in the pool? You had some koala activity in your tree too. I think of you every single day when I am out koala spotting xxx
  5. affected
    07-17-2017 02:16 PM - permalink
    affected
    love you Kay and just wanted you to know I think of you often xxx
  6. marieandian
    06-27-2017 12:20 PM - permalink
    marieandian
    Thankyou for welcoming me. I am still getting used to this site as I'm not used to posting. But I will try my best lol xxx
  7. WendyWooG
    11-18-2016 02:56 PM - permalink
    WendyWooG
    Hi
    Didn't want to hijack the bathroom remodel thread so I thought I would post here.

    https://youtu.be/uu1NP0yVvzs

    I know it's still a commode chair but provides bidet function that can be used anywhere. Seems like an improvement.
    I am a bit worried now that I have mucked up our bathroom remodel so this may be our backup plan.

    Wendy x
  8. Colawoman
    10-10-2016 08:36 PM - permalink
    Colawoman
    I noticed you were on now - how is Max? I haven't been on in a while but I can't find any posts...
  9. nuLE
    09-19-2016 04:31 PM - permalink
    nuLE
    hi, i'm new to the forum...could you please give me the contact info for the person i can get the lunasin products from? we are anxious to give it a try. thank you!
  10. Jocalyn8
    07-15-2016 07:17 PM - permalink
    Jocalyn8
    I hope you are well,

    How is the lunasin going for you?

    I do not know if it's related by my constant twitching has slowed almost completely.

    I bought Reese's peanut butter cup ice cream as a mixer works quite well. It is still some nasty stuff .

About Me

  • About azgirl
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    12/2013
    City
    Tucson
    State or Province
    AZ
    Country
    US
    Biography
    56 yr old recently diagonosed trying to stay positive
    Occupation
    Math teacher
    Interests
    Walking dog, swimming, reading, anything active

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  • Last Activity: Yesterday 08:06 PM
  • Join Date: 01-20-2014

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