awieleba

Dear awielaba,

I read your 2008 post and your story was very much like mine. Pain the moves around, fairly sudden onset. May I ask how you are doing? Were you ever diagnosed?

Thanks and hope and pray you are ok

Hello mam, I have posted a thread yesterday, Suspecting misdiagnosis after 10 years, but haven't received any comment. I really need to know the experience of people whether I am misdiagnosed or not ? I am new to alsforums & don't know how to spread my thread to other members. please help me to get comments from experience members. Thread link: http://www.alsforums.com/forum/do-i-have-als-als/20125-suspecting-misdiagnosis-after-10-years.html

Checking in on you pretty lady.. Wondering how you were doing, and let you know I am thinking of you and yours.

Oh, BTW., the picture of your left hand looks EXACTLY like mine.

Please read the second post first so it will make sense! I didn't realize there was a character limit!

I was googling stuff about antibiotics and your post came up that you contracted c-diff from antibiotics a while back.

I see you were undiagnosed and was wondering if you have lyme or something else. Do you see a particular Dr.?

I am just trying to learn as much as I can. I too have young children and am hoping for some mobility back.

Thank you for reading. I hope you are well!

Amy

Hi Awieleba,

I saw you are located in Oakland Co., MI. I am in Sterling Heights, (Macomb Co.)

I struggled with a possible ALS diagnosis for over a year and then possible MS for 6 months. I have both upper motor neuron signs like spasticity and an abnormal babinski reflex and also lower motor neuron symptoms like weakness, fasciculations, and atrophy.

I can no longer walk unaided and have lost the use of my left arm and hand. (I am typing this with one hand).

I finally became my own doctor and found a Lyme Doctor in Michigan. I had my blood drawn and sent it to IGENEX.

In June 2011, I tested positive for lyme and began oral antibiotics. I have received no results and am scheduled to receive a PICC line tomorrow. I will be receiving the antibiotic Rocephin.

Hi pretty girl.. Wanted to stop in and check on you.. PM me sometime and let me know how things are going.. I sure help well..

hey sweet lady,were have you been hiding?
saw you dropped in on me.........but no message!
hope you are doing ok and your beautiful family.
dont be such a stranger...........take good care.caroline

Are you still around?