awieleba is on a distinguished road

awieleba awieleba is offline

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Showing Visitor Messages 1 to 10 of 131
  1. Pack456
    05-02-2017 10:16 PM - permalink
    Hi awieleba,

    I was wondering if you ever figured out what was causing your symptoms. Mine sound very similar, with clean emgs, NCV's, MRI's etc. just wondering if you could provide any insights.

    God Bless
  2. Aquinn
    03-06-2017 11:11 AM - permalink
    Did you ever get a diagnosis?
  3. Tedesca
    04-29-2016 02:42 AM - permalink
    I'm from Germany and your answer is very Importland to me. My englisch is't well but I hope, you will understand my Message.
    We have got very similar Symptoms. I have got as well muscle twiching all over my Body, buzzing, crampi, weakness and muscle pain. My Reflexes are brick and I have got + ana without positive subtypes. Noone knows my dissease and i hav'nt an diagnosis. One Dr thinks that mabe i've got a kollagenose. This is rhyme. I Hope you can tell me something about your way and dissease.
  4. Albertakewl
    03-21-2016 04:42 PM - permalink
    Hey. How are you doing? Have you had an official diagnosis ? My issues to started after a vaccine. I have had no luck with drs . But some think I am crazy when I am not.
  5. Albertakewl
    03-21-2016 04:34 PM - permalink
    Hello. How are u doing? I am curious how your symptoms are? I to had vaccine and I have had a number of symptoms and no help. Drs think I am crazy.
  6. Jamieh
    10-05-2015 10:26 PM - permalink
    Have you gotten an official diagnosis?
  7. ldc1
    06-16-2015 04:30 AM - permalink
    Hi there. Hope it ok to contact you. I am new to this forum but came across one of your comments about having foot pain after wearing heels post pregnancy. I have the same thing and also fasiculations with ?atrophy. I was just wondering if you ever got an answers to what was causing all of this.
  8. writer07
    04-04-2013 06:57 PM - permalink
    Dear awielaba,

    I read your 2008 post and your story was very much like mine. Pain the moves around, fairly sudden onset. May I ask how you are doing? Were you ever diagnosed?

    Thanks and hope and pray you are ok
  9. mthapa
    08-29-2012 10:32 AM - permalink
    Hello mam, I have posted a thread yesterday, Suspecting misdiagnosis after 10 years, but haven't received any comment. I really need to know the experience of people whether I am misdiagnosed or not ? I am new to alsforums & don't know how to spread my thread to other members. please help me to get comments from experience members. Thread link:
  10. hopingforcure
    10-12-2011 10:33 PM - permalink
    Checking in on you pretty lady.. Wondering how you were doing, and let you know I am thinking of you and yours.

About Me

  • About awieleba
    What's your relationship with ALS/MND?
    seeing neuromuscular specialist for my issue's
    If diagnosed, when was the diagnosis?
    oakland twp
    State or Province
    married to wonderful man, 3 beautiful kids. 6,4, and 7 months
    was a loan officer, now loving mother & wife at home
    golf, tennis, dinner with friends, being with my family
  • Signature
    No dx, still looking and hoping for the best!


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  • Last Activity: 02-23-2016 09:55 PM
  • Join Date: 04-28-2008


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