awieleba is on a distinguished road

awieleba awieleba is offline

Very Helpful Member

Visitor Messages

Showing Visitor Messages 1 to 10 of 131
  1. Pack456
    05-02-2017 11:16 PM - permalink
    Pack456
    Hi awieleba,

    I was wondering if you ever figured out what was causing your symptoms. Mine sound very similar, with clean emgs, NCV's, MRI's etc. just wondering if you could provide any insights.

    God Bless
  2. Aquinn
    03-06-2017 12:11 PM - permalink
    Aquinn
    Did you ever get a diagnosis?
  3. Tedesca
    04-29-2016 03:42 AM - permalink
    Tedesca
    Hello,
    I'm from Germany and your answer is very Importland to me. My englisch is't well but I hope, you will understand my Message.
    We have got very similar Symptoms. I have got as well muscle twiching all over my Body, buzzing, crampi, weakness and muscle pain. My Reflexes are brick and I have got + ana without positive subtypes. Noone knows my dissease and i hav'nt an diagnosis. One Dr thinks that mabe i've got a kollagenose. This is rhyme. I Hope you can tell me something about your way and dissease.
  4. Albertakewl
    03-21-2016 05:42 PM - permalink
    Albertakewl
    Hey. How are you doing? Have you had an official diagnosis ? My issues to started after a vaccine. I have had no luck with drs . But some think I am crazy when I am not.
  5. Albertakewl
    03-21-2016 05:34 PM - permalink
    Albertakewl
    Hello. How are u doing? I am curious how your symptoms are? I to had vaccine and I have had a number of symptoms and no help. Drs think I am crazy.
  6. Jamieh
    10-05-2015 11:26 PM - permalink
    Jamieh
    Have you gotten an official diagnosis?
  7. ldc1
    06-16-2015 05:30 AM - permalink
    ldc1
    Hi there. Hope it ok to contact you. I am new to this forum but came across one of your comments about having foot pain after wearing heels post pregnancy. I have the same thing and also fasiculations with ?atrophy. I was just wondering if you ever got an answers to what was causing all of this.
  8. writer07
    04-04-2013 07:57 PM - permalink
    writer07
    Dear awielaba,

    I read your 2008 post and your story was very much like mine. Pain the moves around, fairly sudden onset. May I ask how you are doing? Were you ever diagnosed?

    Thanks and hope and pray you are ok
  9. mthapa
    08-29-2012 11:32 AM - permalink
    mthapa
    Hello mam, I have posted a thread yesterday, Suspecting misdiagnosis after 10 years, but haven't received any comment. I really need to know the experience of people whether I am misdiagnosed or not ? I am new to alsforums & don't know how to spread my thread to other members. please help me to get comments from experience members. Thread link: http://www.alsforums.com/forum/do-i-have-als-als/20125-suspecting-misdiagnosis-after-10-years.html
  10. hopingforcure
    10-12-2011 11:33 PM - permalink
    hopingforcure
    Checking in on you pretty lady.. Wondering how you were doing, and let you know I am thinking of you and yours.

About Me

  • About awieleba
    What's your relationship with ALS/MND?
    seeing neuromuscular specialist for my issue's
    If diagnosed, when was the diagnosis?
    00/0000
    City
    oakland twp
    State or Province
    michigan
    Country
    US
    Biography
    married to wonderful man, 3 beautiful kids. 6,4, and 7 months
    Occupation
    was a loan officer, now loving mother & wife at home
    Interests
    golf, tennis, dinner with friends, being with my family
  • Signature
    No dx, still looking and hoping for the best!

Statistics

Total Posts
Albums
Visitor Messages
Total Thanks
General Information
  • Last Activity: 02-23-2016 10:55 PM
  • Join Date: 04-28-2008

Friends

Showing Friends 1 to 10 of 29

All times are GMT -5. The time now is 06:32 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016