April E is on a distinguished road

April E April E is online now

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Showing Visitor Messages 1 to 4 of 4
  1. Lostandalone
    09-17-2018 07:36 PM - permalink
    Lostandalone
    I do have brisker reflexes and a couple beats of clonus with the twitching and jerks.
    I too have been on an anti-depressant and has helped significantly for the emotional aspect of all this. I am going to stay away from this site as much as possible and try and remove myself from this nightmare. I will be following up with the neuromuscular doc again in 3 months to see how everything is going. If you want to keep in touch we can through email so feel free to send me your email and I will reach out to you.

    Many thoughts of you and glad to hear you are feeling somewhat better as well!

    Kim
  2. Lostandalone
    09-17-2018 07:36 PM - permalink
    Lostandalone
    Hi April!

    So nice to see your message and thoughts as I proceeded today. I had a very reassuring EMG and NCV. The neuromuscular doctor performing is at a teaching university and heads up their ALS and movement disorders clinic. He talked to me through the exam and found nothing that pointed towards a progressive neurological disease. He believes that what I am experiencing is due to a "smoldering" autoimmune process affecting the small nerve fibers somewhat like small fiber neuropathy. Believes that addressing diet with anti-inflammatory foods and high intensity exercise may help.

    continue.....
  3. Lostandalone
    09-12-2018 09:19 PM - permalink
    Lostandalone
    Hi April,

    I have been trying to stay off the forum as doesn’t help me at all. I’m still having my issues and growing. I am having another EMG on Monday so we will see. I have been doing much better emotionally but is still so tough as this not knowing what is wrong is the toughest part. How about yourself? Any improvement or changes? I hope you are doing better as well.

    Kim
  4. Lostandalone
    07-17-2018 10:32 PM - permalink
    Lostandalone
    Hi April..... I am still seeking out.answers to my symptoms as well. They seem to be continuing to grow by the day and have me very concerned. My EmG was “essentially normal”. I am having throat issues now, growing twitching, jerks, and cramping. My knuckles are sore if hands lay flat for any period of time. It just seems to be never ending. I have another neuromuscular appointment on July 30th. I think the last neuromuscular doc saw me as a hypochondriac. But everything is real. I just need to approach this appointment much differently. I agree that it seems as if without clinical weakness that the doctor doesn’t see anything wrong. There is a reason for all this. I just pray it’s not what I fear.

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