AndyDJX is on a distinguished road

AndyDJX AndyDJX is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 23
  1. Thegabe101
    04-18-2018 11:30 PM - permalink
    Thegabe101
    [I]Hi Andy, hope you are well. Reading your posts, I was amazed to see the similarities in our situations. I would really appreciate speaking to you. If you're still around, could you send me an email at sowa332@gmail.com? I am really struggling with my situation and have a few questions. Greatly appreciated. Gabe [/I]
  2. IvMa6years
    03-12-2018 09:03 AM - permalink
    IvMa6years
    Hi Andy, I've been reading your posts with great interest since I can relate to almost all of your symptoms.

    It would be great if you let us know what your doctors said about the denervation-reinervation issue found in your muscle biopsy. If you have an email or a Facebook account so we can be in touch please let me know.

    Thanks.
  3. Matt21
    01-07-2018 10:35 AM - permalink
    Matt21
    Hi Andy, I can't send private messages here but I was I retested in getting in touch with you. It's about talking to you about our symptoms that are so common and seeing if there are things that helped. My email is elesnake07@gmail.com. Would be great to get in touch with you. Cheers, matt
  4. Matt21
    05-09-2016 01:47 PM - permalink
    Matt21
    Hi Andy, thanks for sharing your story. It is incredible how similar to mine your symptoms are. I mean, the whole thing including muscle tiredness, uncontrollable shaking (you should see me in a plank position!), weakness right after exercise and the list goes on. I have tried a lot of things from natural remedies to Lyme disease related antibiotics. Have been seen by a few neuros and had an emg and mri... Nothing comes up yet I continue to feel abnormal. Lots of back pain and cramps when I flex muscles too. Have you tried anything that helped? Any diagnosis by now? Thanks for sharing your story, sometimes knowing there are others out there like me is a form of reassurance.
  5. worrywartken
    02-19-2016 07:05 PM - permalink
    worrywartken
    So Andy how goes it...
    I'm just a little over 7 years of widespread twitching...did you find out anything more?...
  6. jorando
    08-11-2014 08:22 AM - permalink
    jorando
    Hey Andy,
    my English is not very good but I hope that you can understand. Here and in another forum I saw that you describe all the symptoms that I have and I - flickers in my periphal vision, vision floaters, see my pulse in my right eye, tinnitus in my ears, muscle fasciculations in all body, muscle weaknes. I want to contact if you have the time and willingness to share information about how each of us fight with this bad situation. I hope You are better now.

    Best Regards,
    Georgi
    jorando@abv.bg
  7. lussybaby
    07-26-2013 10:52 AM - permalink
    lussybaby
    Hello my dear
    my name is lussy i was browsing today, so i came across your profile on it seams like some thing touched me, i started having some feelings in me which i have never experience in my life before, that is why i write to you, i will also like to know you the more, and i want you to send an email to my email address so i can give you my picture for you to know whom i am.Here is my email address (lussyomuru11@yahoo.com)I believe we can move from here! Remember the distance or color does not matter but love matters a lot in life) Am waiting for your immediate response i love you with faith and trust. Miss lussy. you can send me your email also pls
  8. bobajojo
    11-29-2011 12:16 PM - permalink
    bobajojo
    by the way, I'm also from Boston.
  9. bobajojo
    11-29-2011 12:15 PM - permalink
    bobajojo
    Hey Andy, I just wanted to send you a message because I've been having bodywide twitching for the past 6.5 months, including my tongue which really freaks me out. At this point, I've had a clean EMG but my twitches are out of control. Literally tongue to toes. At any given time, I can feel a tug, twitch, pull, pop, vibration, flutter in some muscle in my body. At night, I have several going off at the same time. Usually my back, thighs, calves. I get tongue zaps fairly regularly as well. Can you relate to this? I have not noticed any weakness as of yet. Any advice you can give would be great as far as anything you've noticed that helps with twitching. I was hoping that after 6 months, this would have started to subside but it is definitely worse now than its ever been. My twitching has definitely progressed as each month passes. -Matt
  10. kelleyri
    08-29-2011 09:49 AM - permalink
    kelleyri
    Andy -- Thanks for your reply to my inquiry ... I am visiting St. Elizabeth's Hospital in Brighton ... though intend to seek a second opinion at a downtown Boston hospital. Again, thanks.

About Me

  • About AndyDJX
    What's your relationship with ALS/MND?
    Here to help and be helped; have symptms but no dx
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Boston
    State or Province
    MA
    Country
    US

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  • Last Activity: 02-23-2018 06:52 PM
  • Join Date: 03-04-2009

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