Andrea1653 is on a distinguished road

Andrea1653 Andrea1653 is offline

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Showing Visitor Messages 1 to 5 of 5
  1. Dignify
    04-24-2018 11:23 AM - permalink
    Sorry to hear things didn't go well for you. My experience was quite different. I only seen Dr. Kolb at my first appt. and after he listened to my story and did his exam he came right out with he believed I had a motor neuron disease. Mind you I was seeing a Dr. prior to this that pretty much dismissed everything I was telling him. Don't give up, no one knows yourself better than you. You say you have atrophy and weakness. Are you having trouble walking or any other problems that accompany this?
  2. Dignify
    04-04-2018 02:22 PM - permalink
    No problem, glad I could help. Update me and let me know how things go.
  3. Dignify
    03-05-2018 12:35 PM - permalink
    For the most part my experience there has been pretty good. I have had 4 visits so far, all with Dr.Kolb, and one for the emg with another dr. They are thorough and explain things very well. Just remember this is a teaching hospital so you might see a soon to be neurologist along with your appointed one. Sorry you are having to see this type of Dr. Hope all is well.
  4. Atsugi
    02-04-2018 05:40 PM - permalink
    ♥ Atsugi
    Hi Andrea, I encourage you to share BFS resources where everyone can read them. And, as you are not well-known to our people as a medical authority, it would be best to share any advice you have out in the open so other people can see it. If you'd like to open a thread in the DIHALS area with BFS Resources at the title, it might be well received.
  5. Paranoid user
    01-30-2018 05:56 PM - permalink
    Paranoid user
    I'm making a bullshit Facebook account now if you could send the link or at least the name I'd be extremely grateful for your help

About Me

  • About Andrea1653
    What's your relationship with ALS/MND?
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: 09-24-2018 02:41 PM
  • Join Date: 08-30-2017


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