Alexandre is on a distinguished road

Alexandre Alexandre is offline

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Showing Visitor Messages 1 to 10 of 14
  1. Panos1978
    01-28-2014 11:42 AM - permalink
    Panos1978
    Hi Alexandre - I was reading your older posts and since i am having the same symptoms i was really wondering what is happening with you. I hope all is fine. Regards
  2. olly
    07-02-2011 04:05 PM - permalink
    olly
    hi alexandre,just a quick note to see how you are doing..........any dx yet?
    take care,caroline
  3. charlottecorday
    08-26-2010 10:14 AM - permalink
    charlottecorday
    I wish I could help you.
  4. abbas child
    08-25-2010 02:10 PM - permalink
    abbas child
    Alexandre, I just read the four pages on your thread. I will repeat: My first EMG WAS dirty. You really do not have ALS. I wish you peace of mind. Whatever is wrong, whether physical or emotional, I know it's very difficult.
  5. Artisto
    08-17-2010 09:24 PM - permalink
    Artisto
    Alexandre,
    I found the pic of your hands. I noticed I slight difference in your left, but it is difficult to see in the pic. My atrophy is in the same location, but also on the other fatty side of my palm and pinkie finger side. I know how frustrating this can be. All I can say is stay strong, try to keep your thoughts off of the bad things and live today as if there is no tomorrow. If your not happy with your current doc. You should go get a 2nd opinion. I am scheduled to see my new neuro this up coming Monday. You definately want to feel confident with the doc that you choose.
    Arthur
  6. Artisto
    08-17-2010 06:37 PM - permalink
    Artisto
    Alexandre, (here is the remainder responses to your questions.)
    3) I was unable to view your hand pics, your album was empty. I would be happy to view them at anytime.
    My hand weakness is not terribly bad, but it is noticeable than it was before. For example, I do occassionally drop smalls items and difficulty picking up small items with the hand. In addition, I have stiffness to my fingers with cramping throughout the day. I just do continuous hand stretching exercises.
    4) I do see a difference between both hands when they are compared side by side. I measured them, which showed a 2 cm difference.

    Best of luck.
    Arthur
  7. Artisto
    08-17-2010 06:35 PM - permalink
    Artisto
    Hi Alexandre, (I have to do 2 seperate postings, my 1st was too long. The site would not let me send it.)
    I would be more than happy to answer your questions.
    1) My twitching was only in my leg 5 years ago. It was not constant, but enough to ask my doc about. He said it was from activity and/or stress, but not to be concerned. I saw my first neuro 2 years ago, because my twitching involved more areas, which included my hand. I had no atrophy at this time.
    2) The doc did an EMG/NCV, in which he only reported his suspicions to be a pinched nerve in both my elbows (cubetal tunnell syndrome).

    I hope this is helpfull. Best of luck.
    Arthur
  8. charlottecorday
    08-16-2010 09:00 PM - permalink
    charlottecorday
    Alexandre, I think you are hilarious, but I know you have a lot of mental anguish.Do you read a lot?
    If I insult you by saying you are funny, I apologize.I'd give up my house and my car to trade symptoms and EMG's with you.
  9. Twinsmom
    08-16-2010 07:15 PM - permalink
    Twinsmom
    Hi Alexandre,
    Just checking in to see where your head is today? TRUST me, I completely understand how getting the fear of ALS out of your head seems almost impossible. BUT- you really should do your best to do so. You have so much good to be thankful for- you are strong, quite handsome looking at your avatar, and have been told you do NOT have ALS.

    If you need any help trying to figure out how to let it go, just holler!
    Peace,
    Melody
  10. Northern Dancer
    08-15-2010 09:36 PM - permalink
    Northern Dancer
    Hi, Alexandre,
    I am so sorry for the beating you have taken. Please accept my apology on behalf of those who know you are suffering but can't help you.

    Northern Dancer

About Me

  • About Alexandre
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Paris
    State or Province
    Paris
    Country
    FRA

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  • Last Activity: 07-05-2011 10:56 AM
  • Join Date: 06-02-2009

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