AKjo's Profile Picture
AKjo is on a distinguished road

AKjo AKjo is offline


Visitor Messages

Showing Visitor Messages 1 to 10 of 43
  1. Mlcroft
    08-26-2015 03:22 PM - permalink
    I had seen you were looking for a stand for your dynavox and was wondering if you still are? If you still need one please let me know I have one that I would like to sell.
  2. jillinak
    01-18-2015 09:53 PM - permalink
    jo thank you for reaching out to me. I can no longer speak as I have bulbar onset. also my hands and legs are growing weaker. I am going to Portland for gall bladder surgery and then visit my sister in Arizona for three weeks. then on march 19 I go back to Als clinic in Portland. I also go to the Portland VA. my daughter and husband are my current caregivers. but she would love for you to talk with someone that is familiar with ALS. jill
  3. dalvin
    10-27-2014 07:59 AM - permalink
    Hey, Jo. Just an early riser.
  4. Barbie
    12-26-2013 11:15 PM - permalink
    Just want to wish you a merry Christmas and happy new year...You are an inspiration to me and so many here!
  5. skipper66
    12-12-2013 02:07 PM - permalink
    Hi Jo,
    Just wanted to stop by and wish you Merry Christmas. It sure is sneaking up on us fast. I am still trying to arrange to get to Dallas, Texas to see my dad in January for a few days. He is tolerating the drug Acthar well but we really don't know if it is helping or not. Take care, Kim
  6. skipper66
    10-19-2013 05:09 PM - permalink
    Hi Jo,
    How are things going for you and your hubby? My dad is currently staying steady for the time being. He is participating in a clinical trial of the drug Acthar. He will be getting two injections per week. Only 40 people in the U.S. I think if dad were younger he would have fought hard to get into the stem cell thing. Take care, Kim
  7. skipper66
    09-02-2013 08:28 PM - permalink
    Hi Jo,
    How are things going for you? I'm doing ok but miss my dad alot. We couldn't find any good quality caregivers for him so he moved to Dallas to be near my brother and sister. He is currently living in a facility similiar to a assistant living facility but with 24/7 care. He seems to like it pretty well so far. If it doesn't work out my brother is going to remodel his house so dad can move in with them and they would get him someone 24/7 to help with his care. Do you have someone who helps you with your husband? Take care, Kim
  8. Cricket
    04-21-2013 06:38 PM - permalink
    We have a canadian cycle team too (out west)... ALS Cycle for Hope. It would be très cool if the two groups could meet...
  9. skipper66
    03-23-2013 03:20 PM - permalink
    Hi Jo,
    How is everything going with you? I live in a small town in Central Illinois. I am going to have groundhog stew if we get the snow that is predicted to start at midnite tonite. I am so ready for spring so we can get my dad out more. My dad watches movies on Netflix alot to kill the time. He also likes to watch all the college basketball games that are on. I will probally dye Easter eggs with our youngest son in a few days. I think the twins who are fifteen actually have just as fun doing it as he does but they won't admit it ever. Hope you have a nice Easter. Drop in on the Cup of Tea forum on here. We need more forum members to share on there. Take care, Kim
  10. skipper66
    02-24-2013 02:33 PM - permalink
    Hi Jo,
    How are things going for you? My dad is doing so-so I'd say. With this disease it's hard to gauge at times. He could be a whole lot better but at the same time be a whole lot worse. But, my dad isn't as young as some being 78. Dad is still able to eat on his own but slowly. His arms are very weak and he has very limited use of his fingers since they are now curved under. He can take a few steps while using a walker and somebody strong directly behind him holding firmly to his gait belt. His lung capacity is pretty good so he is at this time not using his bi-pap. He drinks Boost at least once a day. We are anxious for spring to get hear so we can get dad out in some fresh air for a little while. Take care and feel free to drop a note anytime. Kim

About Me

  • About AKjo
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
  • Signature
    A smile is a window that shows your heart is at home.


Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 11-14-2018 03:21 PM
  • Join Date: 11-03-2010


Showing Friends 1 to 10 of 20

All times are GMT -5. The time now is 11:26 AM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016