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Visitor Messages

Showing Visitor Messages 1 to 10 of 63
  1. skipper66
    11-19-2014 02:03 PM - permalink
    skipper66
    Hi Rob,
    I saw you haven't been on for a few days and was concerned. Praying for you my friend. Kim
  2. AfraidButNotAlone
    10-08-2014 12:07 PM - permalink
    AfraidButNotAlone
    This is NOT a change in my approach to the DIHALSers. I'm just struggling (still), and as I am sure most of us (PALS) are, with some of the persistent posters.

    Why is it they are happy if we would agree with their self-diagnosis or their disagreement with at least one board certified doctor, but think we are bitter, nasty folks if we think they have anxiety issues....
  3. skipper66
    09-24-2014 03:01 PM - permalink
    skipper66
    Hi Rob,
    Hope you are feeling a little bit better today. I read your post on the constipation. We see people in extreme pain come into ER with it. It's a miserable thing for sure. Hope some of the suggestions are helping you a bit. Just want you to know I think of you and othe other PALS/CALS on here often. If I can do anything ever to help you or your famiy please let me know. You are in my prayers. Kim
  4. skipper66
    09-02-2014 05:00 PM - permalink
    skipper66
    Happy Birthday to you....... Happy Birthday to you.. Happy Birthday to you..... Cha Cha Cha
  5. dldred
    09-02-2014 12:32 PM - permalink
    dldred
    Happy Birthday !!

    Dana
  6. skipper66
    08-26-2014 11:56 PM - permalink
    skipper66
    Hi Rob,
    Thinking of you. My son and I did the ice bucket challenge yesterday. Several family members and friends are doing it in honor of dad. Praying for you. Kim
  7. skipper66
    07-11-2014 05:11 AM - permalink
    skipper66
    Hi Rob,
    Just wanting to tell you I'm thinking of you. You are in my prayers. Kim
  8. skipper66
    06-19-2014 03:00 PM - permalink
    skipper66
    Hi Rob,
    Hope things are going ok with you and your family. I had a nice visit with my dad in Dallas. I actually thought he looked better then he did when we saw him at Christmas. But, he was just getting over a cold then as well. He hasn't really progressed too much since then. We were able to take him out to eat 3x's while I was there and then my boys were there for 3 days after me. They took him out to see a movie and he went over to my brother's house and relaxed by his pool while the boys swam and they all had pizza. Dad is hoping to get a van soon through the VA. It is so hard to transfer him now without it. Take care, Kim
  9. skipper66
    05-25-2014 04:11 PM - permalink
    skipper66
    Hi Rob,
    Just checking in with you. How are things going? I've been working quite a bit and starting to get a little burnt out. But, the money will help out when I go visit dad on June 9th in Dallas. My daughter and I are taking a train out of St. Louis. We will be making a decision real soon as to rather we will be flying home or returning by train. It's a two hour drive from our home to St. Louis. How are you tolerating the Riluzole? Take care, Kim
  10. skipper66
    05-02-2014 02:39 PM - permalink
    skipper66
    Hi Rob,
    Please keep me posted on how you are doing with the Riluzole. Dad is debating as to get back on it or not. Hope you have a nice weekend. Kim

About Me

  • About AfraidButNotAlone
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    07/2013
    City
    Atlanta
    State or Province
    GA
    Country
    US
    Occupation
    I'm a teacher
    Interests
    Reading, Puzzles, Games, Sports
  • Signature
    "Not that kind of angel"

    Thessalonians 5: 16 - 18

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  • Last Activity: 01-31-2015 11:13 PM
  • Join Date: 07-27-2013

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