affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute

affected affected is online now

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Visitor Messages

Showing Visitor Messages 1 to 10 of 285
  1. MariaMary
    04-26-2018 08:23 PM - permalink
    MariaMary
    Hi. New member...can you tell me how to post? I have tried searching the entire FAQs and can't figure it out. Sorry to bother.
  2. Aussiemndcarer
    04-10-2018 10:22 AM - permalink
    Aussiemndcarer
    Hello. I would just like to send you a huge thank you for all your posts that help others. You are truly amazing Tillie.
  3. Wishful
    01-27-2018 08:55 PM - permalink
    Wishful
    Thank you for your reply in my thread, I appreciate you taking the time to do so.
  4. mpnatx
    12-28-2017 01:59 PM - permalink
    mpnatx
    Thanks you so much Tillie! Birthdays never meant much to me. But now, birthdays are a major milestone!
    Love you!
  5. blue sky
    11-16-2017 10:28 AM - permalink
    blue sky
    Hello Tillie,
    I am sorry for your loss.

    I had a question regarding your experiences at night and the challenges. I found it difficult and I was wondering if a new communication device for night or sleeping time will help?
  6. CJnCherie
    09-27-2017 02:25 PM - permalink
    CJnCherie
    Hi. I'm a CALS. Never posted. My Significant other is Bulbar onset and is scheduled for a PEG tube procedure next week. I think I remember you posting that if it had been your call, you would not have had it done. She hydrates through a PICC line right now and wants to lose the PICC line. May I ask why you made that comment? I am concerned...

    Thank you, CJ.
  7. affected
    08-29-2017 02:28 PM - permalink
    affected
    Sandy has not had water actually in the house, and had filled the pantry. She also never lost power. The water moving through her yard however is amazing. I've sent her photos and video of Racee and joey in Max's tree :)
  8. littlered
    08-29-2017 10:01 AM - permalink
    littlered
    I want to think that Racee is watching out for Max's Sandy with all that is going on in Houston.
  9. azgirl
    07-17-2017 02:44 PM - permalink
    azgirl
    Thanks, love you back. Glad I finally got tube but SO missing my pool time. You keep a good eye out for us pals!
  10. terrik
    05-13-2017 05:55 PM - permalink
    terrik
    Thank you Affected:) I posted a new thread under CALS. Not tech savvy, but your instructions were wonderful. Love and Hugs to you! terrik

About Me

  • About affected
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    05/2013
    City
    lala land
    State or Province
    home
    Country
    OZ
  • Signature
    ------------
    Tillie

    ...wwW*Www...
    Queen of Hearts

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