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Showing Visitor Messages 1 to 10 of 16
  1. NeedCourage
    08-04-2014 09:44 AM - permalink
    NeedCourage
    just posted this but wanted to be sure you saw it because of your answering my message...

    HALLELUJAH!
    With gratitude for all your encouragements ... I just got off the phone (after many wrong turns and frustrating calls to various places) and have an appt for my Pals on THIS THURSDAY at the ALS multidisciplinary CLINIC in Pittsburgh's Allegheny General Hospital. They had a cancellation!
    Will be reporting in soon with some REAL information. Breathing/appetite/energy continue to decline. But at this moment I'm H A P P Y to be professionals who know about the beast. Thanks again for your help.
    Love,
    Nancy
  2. BlueEyesOhio7
    07-29-2014 08:54 PM - permalink
    BlueEyesOhio7
    I've read a lot of your posts and you have a wonderfully positive attitude. How'd you do that?

    Lynne
  3. krnNdug
    06-30-2014 01:52 PM - permalink
    krnNdug
    I read your post in the one referring to a new wheelchair and how to get the lift approved for a new wheelchair. My current chair won't be enough and am going to work with the mobility specialist when I go to clinic in 3 weeks. Can you please help me with what/who Lgelb is in your post? I tried a search to look up the 5 myths and can't locate this specific group. I am going to clinic in a couple of weeks and am going to work with the mobility people and would like to read this beforehand.

    Thanks a lot,
    Doug
  4. olly
    06-06-2014 04:59 PM - permalink
    olly
    Hi,how are you doing ? I don't get on the forum much these days. Good to see you and hope your as well as you can be....know what I mean .
  5. olly
    01-31-2014 05:49 PM - permalink
    olly
    Hi,not seen you around much. How are you doing?
    Its so sad when these deseases effect ones so young,i was 30-31 yrs old when I started my mnd journey.
    Hope your not progressing too quickly.
    Take care,caroline.
  6. BrianD
    11-18-2013 12:47 PM - permalink
    BrianD
    You're welcome! I use it all the time when I've already moved away from my Dynavox. But only the spelling pages so far. And for my helpers, it is easier for them to just point to the letters rather than the actual two step with the eyes. Always good to have a low tech backup.
  7. AfraidButNotAlone
    09-22-2013 10:35 AM - permalink
    AfraidButNotAlone
    I noticed you hadn't been on for about a week. How are you doing?
  8. hjlindley
    08-15-2013 09:45 AM - permalink
    hjlindley
    Well yes I figure we pals on a stick together. I don't blog what I write food reviews for Richmond magazine. My new favorite thing to keep weight on, though that's not too big a problem for me yet, is Alden's organic ice cream. No chemistry just amazing flavor. The other thought would be hummus and babaganoush, the 2 Arab dishes. They should have a good calorie count in the chickpeas give you some protein. Good luck and I am enjoying what you put up on tumbler. I'm going down to the NeALS meeting in Florida. I figure as long as I can speak I need to speak for all of us.
    Hollister
  9. JTorm
    07-31-2013 03:18 AM - permalink
    JTorm
    thanks ;) ... i'll be doing these days a self editorial.. just for the LOLS
  10. JTorm
    07-27-2013 10:33 PM - permalink
    JTorm
    Hi Ashley, I'm getting issues with food.. I have dropped a lot of weight... Do you know any supplement that can help the throat? I wonder if when you developed throat and swallowing difficulties, your breathing was affected? I'm trying to sleep but I can't.. Don't know If it is because of anxiety or something..

About Me

  • About adozi
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    03/2012
    City
    Louisville
    State or Province
    KY
    Country
    US
    Biography
    Ashley. Huntsville, Nashville, Louisville. Married. Person with ALS. Hi.
    Interests
    Family and friends, TV addict, political and news junkie, Vandy fan, nature lover, cats

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  • Last Activity: 06-03-2015 04:30 PM
  • Join Date: 12-28-2011

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