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Showing Visitor Messages 71 to 78 of 78
  1. johnnyliverpool
    06-06-2010 06:29 PM - permalink
    johnnyliverpool
    ad....i have weakness in legs and arms...they say i have increased muscle tone..spasticity...the muscles pull on the tendons on my joints. making them very sore. curiously increased tone does"nt make me stronger...i feel a big loss in strenth. my symptoms started in my legs years ago. have some contractures, mostly in my arms...unsustained clonus all over..even in my chin. and these wonderboys tell me they don"t know whats causing my symptoms. i do get numbness..in my legs mostly..always on the outer perimiters..tell me ore about your symptoms..........loves john.
  2. johnnyliverpool
    06-05-2010 07:02 PM - permalink
    johnnyliverpool
    al keep you posted ad....u keep me posted on anything new on yr side...loves john.
  3. johnnyliverpool
    06-05-2010 02:42 PM - permalink
    johnnyliverpool
    oh yes...walking..well, like a duck and painful..heavy legs...not far without stopping..........john.
  4. johnnyliverpool
    06-05-2010 02:35 PM - permalink
    johnnyliverpool
    adrianno, ur so right..how can they say its in my spine.and do nothing, an excellent point. am back to see my doc..thanks...well am glad for you thats its curable, but the op sounds ugly,,,,in the morning am at my worst..stiff, sore and wobbly...and muddled. gradually pick up as day goes on....i look well and feel crap mostly...theres no escape..maybe a few pints of beer makes me feel at my best. but am not winging..theres so many on here so worse off.....glad i bumped into you. your a women who knows what she wants and how to get it....keep talking, loves john.
  5. johnnyliverpool
    06-04-2010 07:40 PM - permalink
    johnnyliverpool
    well blow me down with a feather...my last but one neuro was a specialist in the pituitary gland, which is the hypophisis..the adenoma is a benign tumour...a tumour on the gland causes things to happen and the symptoms are similar to ours..but i was cleared..the gland is in the base of the brain. hope u knew all this and does"nt apply in your case..unless its cureable which would then be great...its tough this is"nt it..loves john.
  6. johnnyliverpool
    06-04-2010 07:21 PM - permalink
    johnnyliverpool
    adrianna, hypophisis. adenoma blimey i ain"t got a clue what they mean..gonna find out in a minute.......cortizone sounds drastic!......but if it helps my legs..well..................call back later......john.
  7. johnnyliverpool
    06-02-2010 02:28 PM - permalink
    johnnyliverpool
    adrianna. its seems i sent message ment for you, too myself...i am a fool..do u have, like me the um neuron syndrome? ever had the startle reflex?..two questions to get us going...god bless, john.
  8. johnnyliverpool
    05-31-2010 06:40 PM - permalink
    johnnyliverpool
    hi. additz...john here..would like to talk.i see u visited...cheers........

About Me

  • About aditzvetkova
    What's your relationship with ALS/MND?
    Currently in limboland
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Sofia
    State or Province
    Sofia
    Country
    BG
    Biography
    Happily married with two grown up kids - daughter (25) and son (23)
    Occupation
    Philologist - Interpreter
    Interests
    I adore reading, animals, making friends

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  • Last Activity: 01-31-2019 06:54 AM
  • Join Date: 05-14-2010

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