Mw40love
New member
- Joined
- May 28, 2016
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- Oregon
- City
- Portland, OR
I have had MG symptoms for a year, bulbar onset, with much relief from Mestinon. I do not have an MG diagnosis because all the tests, including tensilon, were inconclusive. Tensilon only improved my respiratory VC by 7%. My resp VC is now down to 60% but my MIP and MEP are holding steady, not good, but holding steady. Longstanding swallowing/speaking issues and severe weakness. Unfortunately, now I am having muscle wasting in right forearm, pain in Achilles' tendon, and fasciculations have moved to my tongue. I know these are very bad signs. I have my 4th emg tomorrow. I'll let you know how it goes. Been lurking on this site for a year and I know you will rally round if bad news.