stvhck
Active member
- Joined
- Apr 19, 2011
- Messages
- 44
- Reason
- Learn about ALS
- Country
- US
- State
- CA
- City
- Irvine
Hello All-
Its been awhile since I have been on the boards but wanted to check in and post an update on my "condition" along with EMG results from today.
I have been twitching since Nov 2010. My twitching presented in both calves and feet and has remained a constant since day one. I also get random, unexplained twitches/spasms throughout my body and I have not been able to link them to any activity or reason. I was finally diagnosed with bilateral ulnar neuropathy earlier this year (FEB 2012) after my third EMG.
Today I consulted with the ALS specialists at Cedars Sinai hospital in Los Angeles. I had the head of the department use me as a guinea pig of sorts by allowing a doc in training to perform an EMG/NCV on my arms. The doc in training made several mistakes and the head of the department had to redo many of the steps on the exam.
Good News: The ulnar neuropathy in the right arm has improved and is barely borderline now. The left arm is still mild to moderate but is either the same as previous results or slightly better.
Bad News: They found positive sharp wave potentials in the muscle between my thumb and index finger on the left arm. Also the reflexes in both arms/elbow region are very diminished and took several attempts to locate.
The doctor did not seem overly concerned however I wanted to check with folks here to see if you have had a similar experience? I assume the positive sharp waves could be from the ulnar neuropathy? What would cause the diminished reflexes in both arms?
Thanks!
Its been awhile since I have been on the boards but wanted to check in and post an update on my "condition" along with EMG results from today.
I have been twitching since Nov 2010. My twitching presented in both calves and feet and has remained a constant since day one. I also get random, unexplained twitches/spasms throughout my body and I have not been able to link them to any activity or reason. I was finally diagnosed with bilateral ulnar neuropathy earlier this year (FEB 2012) after my third EMG.
Today I consulted with the ALS specialists at Cedars Sinai hospital in Los Angeles. I had the head of the department use me as a guinea pig of sorts by allowing a doc in training to perform an EMG/NCV on my arms. The doc in training made several mistakes and the head of the department had to redo many of the steps on the exam.
Good News: The ulnar neuropathy in the right arm has improved and is barely borderline now. The left arm is still mild to moderate but is either the same as previous results or slightly better.
Bad News: They found positive sharp wave potentials in the muscle between my thumb and index finger on the left arm. Also the reflexes in both arms/elbow region are very diminished and took several attempts to locate.
The doctor did not seem overly concerned however I wanted to check with folks here to see if you have had a similar experience? I assume the positive sharp waves could be from the ulnar neuropathy? What would cause the diminished reflexes in both arms?
Thanks!