irismarie
Very helpful member
- Joined
- Nov 21, 2009
- Messages
- 1,386
- Reason
- PALS
- Diagnosis
- 05/2010
- Country
- FR
- State
- tarn et garonne
- City
- valeilles
Yesterday drove all the way to Toulouse 100 km for my 100% evaluation after it was refused the first time cos I was not taking any medication for my illness!
Have waited months since I applied. Arrived for appt centre town at 5pm - traffic Hell.
Found the building marked "Medical Centre". With a steep step to get into the building. S unpacks me from the car and bundles me up to the building and struggles to get the chiar with me in up the step. Eventually an arab and an african come to help him - thanks, friends.
Find ouselves in a dark, narrow corridor. NO LIFT and the doc's office up two steep flights of rickety stairs. I was just so furious I could feel this ball of anger in me needing to explode and of couse cried.
S goes up the stairs to find the doctor who had not responded to his buzzer. After quite a while he deigns to come downstairs. Nothing he can do as it is not his fault . The neuros who sent me there had said I could walk on sticks/ Bastards! I was in a chair last time I saw them and could not have got up those stairs even with sticks.
Anyway, the" anger and the tears were taking over and I was "shouting" (cant do really loud now) at him various insults. He insisted that for an expert opinion he had to have me undressed and on the bed (how many time I have heard that before!;-)) and refused to accept that he could examine my legs and my arms and that that was where the problem lay.
SO I was getting a bit ridiculous by now and offerred to undresss there in the corridor and really scared him. Then, I decided i'd get out of my chair and they could drag me upstairs between them. I managed to stand up by pulling on the stair rail and the wall but of course could not move a foot and had to be flopped back down in the chair. He was adamant. Could not give a decision withou that damned couch!
When we came out of there I was so full of anger and hatred, an emotion that is alien to me.
But on the drive home (what a waste of a day!) I was fascinated by the realisation of how low people can sink. The neuros at Agen have never forgiven me because I let myself out of their "care" without their permission. How petty can they get. And this fiasco stemmed directly from them. I give up and just try to get through this without the bloody system. Thank Heaven the Social Services have been kind!
Today the sun is shining and I am smiling. But hey, what a day!
Have waited months since I applied. Arrived for appt centre town at 5pm - traffic Hell.
Found the building marked "Medical Centre". With a steep step to get into the building. S unpacks me from the car and bundles me up to the building and struggles to get the chiar with me in up the step. Eventually an arab and an african come to help him - thanks, friends.
Find ouselves in a dark, narrow corridor. NO LIFT and the doc's office up two steep flights of rickety stairs. I was just so furious I could feel this ball of anger in me needing to explode and of couse cried.
S goes up the stairs to find the doctor who had not responded to his buzzer. After quite a while he deigns to come downstairs. Nothing he can do as it is not his fault . The neuros who sent me there had said I could walk on sticks/ Bastards! I was in a chair last time I saw them and could not have got up those stairs even with sticks.
Anyway, the" anger and the tears were taking over and I was "shouting" (cant do really loud now) at him various insults. He insisted that for an expert opinion he had to have me undressed and on the bed (how many time I have heard that before!;-)) and refused to accept that he could examine my legs and my arms and that that was where the problem lay.
SO I was getting a bit ridiculous by now and offerred to undresss there in the corridor and really scared him. Then, I decided i'd get out of my chair and they could drag me upstairs between them. I managed to stand up by pulling on the stair rail and the wall but of course could not move a foot and had to be flopped back down in the chair. He was adamant. Could not give a decision withou that damned couch!
When we came out of there I was so full of anger and hatred, an emotion that is alien to me.
But on the drive home (what a waste of a day!) I was fascinated by the realisation of how low people can sink. The neuros at Agen have never forgiven me because I let myself out of their "care" without their permission. How petty can they get. And this fiasco stemmed directly from them. I give up and just try to get through this without the bloody system. Thank Heaven the Social Services have been kind!
Today the sun is shining and I am smiling. But hey, what a day!