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irismarie

Very helpful member
Joined
Nov 21, 2009
Messages
1,386
Reason
PALS
Diagnosis
05/2010
Country
FR
State
tarn et garonne
City
valeilles
Yesterday drove all the way to Toulouse 100 km for my 100% evaluation after it was refused the first time cos I was not taking any medication for my illness!

Have waited months since I applied. Arrived for appt centre town at 5pm - traffic Hell.

Found the building marked "Medical Centre". With a steep step to get into the building. S unpacks me from the car and bundles me up to the building and struggles to get the chiar with me in up the step. Eventually an arab and an african come to help him - thanks, friends.

Find ouselves in a dark, narrow corridor. NO LIFT and the doc's office up two steep flights of rickety stairs. I was just so furious I could feel this ball of anger in me needing to explode and of couse cried.

S goes up the stairs to find the doctor who had not responded to his buzzer. After quite a while he deigns to come downstairs. Nothing he can do as it is not his fault . The neuros who sent me there had said I could walk on sticks/ Bastards! I was in a chair last time I saw them and could not have got up those stairs even with sticks.

Anyway, the" anger and the tears were taking over and I was "shouting" (cant do really loud now) at him various insults. He insisted that for an expert opinion he had to have me undressed and on the bed (how many time I have heard that before!;-)) and refused to accept that he could examine my legs and my arms and that that was where the problem lay.

SO I was getting a bit ridiculous by now and offerred to undresss there in the corridor and really scared him. Then, I decided i'd get out of my chair and they could drag me upstairs between them. I managed to stand up by pulling on the stair rail and the wall but of course could not move a foot and had to be flopped back down in the chair. He was adamant. Could not give a decision withou that damned couch!
When we came out of there I was so full of anger and hatred, an emotion that is alien to me.

But on the drive home (what a waste of a day!) I was fascinated by the realisation of how low people can sink. The neuros at Agen have never forgiven me because I let myself out of their "care" without their permission. How petty can they get. And this fiasco stemmed directly from them. I give up and just try to get through this without the bloody system. Thank Heaven the Social Services have been kind!
Today the sun is shining and I am smiling. But hey, what a day!
 
Oh my gosh Iris, I am so sorry for what happened to you. It is just unforgivable. how can Drs be so crule and cold? i don't understand it....Sending you sunshine and flowers today...L
 
I am speechless...how can I help dear one? Sending you powerful Prairie hugs this morning! xo
 
Oh wow, now I know why you were upset yesterday, I didnt see this thread until now. So, this is how government run medicine is done? Oh, we are looking at a similar program, and well, no thanks! You poor thing you! That was just CRAP! What are those people thinking? Have they just not heard of ALS? Sending you some hugs from across the globe sweetie!
 
yikes iris! you would think you were in a third world country with that kind of help! inexcusable. hugs to you my dear
 
I am sorry you had a bad experience! Glad you appear to be doing better to day.

Blubear, not all government run medical is like that, don't fear it. There is good and bad in anything.
 
Yea, I'd don't think I'd correlate this poor service with the fact that it's government run care. We've seen our fair share of poor service and have had the pleasure of paying through the nose for it too. It seems to me that about 10% of people do an absolutely excellent job, 10% do little or nothing and the other 80% vary from very good to poor. It doesn't seem to matter what the profession is or who pays the bill. Irismarie, it sounds like you found some of the 10% at the bottom for your neuros (which explains why you took yourself off their care). I've done similar with dentists, eye doctors and other providers that I didn't feel were providing effective service. Unfortunately, it can take some time and money to weed out the poor performers.

Dick
 
Just a thought? wonder if we are totally run by goverment and that [Irismarie Dr.] is the only provider for her? How bad would that be and Yes that could happen very easy with the Health care plan being presented and trying to pass... No thanks
 
Health care should be a right conferred on every citizen, not a privilege allowed only to the wealthy or gainfully employed. I really don't care how we get there but what we have now is a situation in which the only people who receive good care are the ones least likely to need it. Millions of people, and their families, have lost their health care due to the simple fact that they have lost their jobs. That's not the kind of thing that should happen in a civilized society. For all the money we pay in this country for health care we rank way below a whole lot of other nations for access to quality care. The current plan being floated today may not be the solution, but doing nothing is a recipe for disaster. Sorry about the US centric view on a global board. There are good and bad doctors everywhere, that's never going to change. The difference is, are you going to be able to see a doctor when you need to or are you going to worry that maybe the kids won't eat this week so you can pay the cost of the visit. I would rather see good health care for all then superlative health care for only those who can afford it. And I happen to be in the group that can afford it (at least as long as I don't lose my job).
Dick
 
Irismarie :
______________________________________________________
______________________________________________________.
(The above two lines were the words I used to describe your neurologist and anyone else who violated your rights. I have spared Joel the task of deleting them).
--JK
 
COMPLETELY amazing! and not in a good way.
 
Hey Rat, you are to FUNNY! I luv ya!
Pepsiman, France is suppose to be #1 in the world as far as how their health care is run. After reading the mounds of paperwork, and all of the headaches Irismarie has had to endure I cant see why it is #1. Her experiences have not been to good more often that this past week. There are bad doctors and good doctors everywhere I agree. Canada seems to have it truly going on. Medicare works, but the prescription plan with the doughnut hole has helped put this country in the hole financially. Glad to see someone in the white house finally working on it though.
 
Dick, THANK YOU! I won't go into my personal experience but I agree with you 300%.
 
Iris Marie, that is terrible! I think the neurologists that sent you to that place should be hooked up to a high-voltage NCV tester until they writhe in pain!
 
Iris Marie,
Those ugly souls are just that...ugly souls. I'm so sorry you've had to have your life exposed to such horrible creatures. While we can't actually give you the medical care you need through cyber connections, I PRAY you feel our love and encouragement.

Lifting you up in prayer for courage and grace!
May your weekend be filled with love and joy!
Peace,
 
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