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Visitor Messages

Showing Visitor Messages 1 to 10 of 15
  1. brooksea
    09-03-2012 05:13 PM - permalink
    brooksea
    Hope you are doing alright. This is very difficult...
  2. 10steps
    06-24-2012 10:43 AM - permalink
    10steps
    Hey brooksea, glad you and your son got out to the MTNS. I went to the doctor who then sent me to the chiropractor - 3, 45min sessions fixed it all! At least your son is able to chat about his dad and that's a positive. My neck of the woods - BUGGY! The deer flies are vicious so I try to stay away from the swampy areas since they seem worse there.
  3. brooksea
    06-23-2012 04:35 PM - permalink
    brooksea
    Hi! My son and I just got back from the NGA MTNS. It was fun, but kinda sad, too. I've got back problems, as you can imagine, and just couldn't go-go-go like my son wanted to. He kept bringing up "before daddy got sick, he would've done 'this or that' everyday." It's really hard dealing with a know-it-all 12 year old sometimes! LOL How are things in your neck of the woods?
  4. retiredmus2010
    12-24-2011 12:07 AM - permalink
    retiredmus2010
    Hi 10steps ( love that)
    I was just checking on you and sending you a VERY BIG HUG. I am thinking that this holiday season will be bringing you a different set of emotions. I am only a post away!!!!
    G.
  5. Lobster
    12-19-2011 02:38 PM - permalink
    Lobster
    I hope you are staying warm and finding some peace.
  6. momap53
    10-23-2011 08:35 AM - permalink
    momap53
    So sorry to hear about your loss. May god give you strength in the days ahead.
    Deb
  7. brooksea
    10-20-2011 06:43 PM - permalink
    brooksea
    Just wanted to send you hugs during this time. Hope your husband is comfortable and you have all the help you need... CJ
  8. retiredmus2010
    09-01-2011 08:57 PM - permalink
    retiredmus2010
    Hi..... I hope I am sending this to the correct place.
    How is your husband??? Is he in good spirits??
    We first saw symptoms in mid 2009 and began with a local neuro who thankfully sent us directly to Johns HOPKINS. However, from that point it took us from November 2009 until April 2010 to get a diagnosis. How about you?. I feel we will have much to talk about, 10steps. Love your name...what significance is that may I ask????
    I am retiredmus2010 AKA, Ginger
  9. Mark's Girl
    08-23-2011 12:57 PM - permalink
    Mark's Girl
    Mark does choke...mostly on liquids...on food too if he does not go slow....eating just exhausts him....so, I don't think he is eating enough to sustain himself....I wont give up on pushing for the PEG until his breathing issues decline to the point that surgery could not be done....I want to support his wishes...but, I want him to be with me for as long as possible too....I'm just selfish I guess!
  10. Mark's Girl
    08-22-2011 07:27 PM - permalink
    Mark's Girl
    Oh Gosh....Mark had a kind of funny walk/limp too...always tired. I think your hubby is a little ahead of mine in his symptons...Mark can take a few steps with a rolling walker...can't stand without help tho...I am seeing a decline in all areas...but, legs were the first to really 'go'. His weight issue has really got me worried....it is almost like he is accepting it...he used to want to weigh everynight...and would stuff himself to try to maintain his weight....now, he doesn't ask me to bring him the scale...and I can see bones where I never could before. How do you know when you should stop pushing for the PEG?

About Me

  • About 10steps
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    04/2010
    City
    western
    State or Province
    MA
    Country
    US

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  • Last Activity: 11-08-2013 09:22 PM
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