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Old 05-20-2009, 06:46 PM   #46 (permalink)
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Uggh. Soy should not be eaten by man or beast. Just take lactase. I hear the efficacy depends on the brand.

Coconut milk is a great source of saturated fat. A coquito (http://en.wikipedia.org/wiki/Coquito) might be a good way to dissolve vitamins. It is extremely dense and very difficult to get drunk on. It would be a decent ice cream substitute if you used another sweetener in place of the condensed milk.

Rose, are you sure that you crave what you taste as opposed to vice versa? Does anyone else get sugar or fat cravings, or specific ones like vinegar or wine?

I didn't reference the Sinai study but if you provide a citation I'll look at it. If you say it was lard, it was lard. I was referring to other studies.

On the subject of trans - trans fat has been demonized for screwing up your lipid profile. If you have ALS, that's exactly what you want. On the other hand, partially hydrogenated oils are unsaturated by definition and definitely unnatural. As a healthy person, I wouldn't eat them.

Trans fats are probably toxic but so are many drugs. So you might end up ahead of the game by eating shortening, even though in people without ALS the toxic effects outweigh the (nonexistent) benefits. I don't know much about trans fats yet but I'd bet the media and a few hard gunning scientists have blown trans out of proportion, while neglecting the proven toxicity of polyunsaturated fats.

Anyway, somebody should look seriously into trans, as I probably won't get to it for awhile.
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Old 05-20-2009, 08:11 PM   #47 (permalink)
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"Does anyone else get sugar or fat cravings, or specific ones like vinegar or wine?"
WTF? I have EVERTHING cravings!!
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Old 05-20-2009, 09:27 PM   #48 (permalink)
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Aggghhhh!!!! My vote for best comment of the week goes to Barry by a mile!!!
Well said, Bro!!!
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Old 05-22-2009, 08:47 AM   #49 (permalink)
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Barry,

I agree with Rick, you win (how to collect your fabulous prize will be arriving in your mail within the next 6 - 10 weeks, be sure to check your mailbox daily LOL)

Maverick,

You know how research has shown that one of the reasons its so hard to stop smoking is that the person misses the hand to mouth action.... well, not everyone has smoked, but, we, as regular everyday humans have eaten multiple times a day our entire lives. Then to not be able to do this anymore? .... as Barry so eloquently put it, WTF

I don't think that because I crave a specific category, that this is why I am able to taste it. That concept seems like it would be stating I could will myself into being able to taste something.

I think I enjoy these types of flavors more now just because almost everything else has almost no taste to it. This carries over to other types of food. An example is that now I prefer stronger cheeses, cannot taste bland ones at all, they might as well be rubber. The exception I've noticed is chocolate flavor, I used to definitely prefer dark, and now not so much, but I think its just that sugar is hard for me to taste, and the dark is not as sweet as milk chocolate...

I would be interested to know if any other PALS here on this forum have lost their ability to taste well too. As I'd mentioned in my previous post, every doctor I've discussed this with has said I have no other indicators for a cause, and that the 7th & 10th cranial nerves are the ones responsible for this, and also the nerves which innervate muscles which I had problems with first..... that even though ALS is a disease of the motor neurons, it does not always limit itself to just the motor function of nerves involved.

... and not to make light of being lactose intolerant, (I have a good friend who is, and it is a real pain) I would trade this for being able to taste other food in a heartbeat!
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Old 05-22-2009, 05:15 PM   #50 (permalink)
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I would be interested to know if any other PALS here on this forum have lost their ability to taste well too.

I had lost my ability to taste anything but got it back when I got my trache and vent! Go Figure???
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