My sister has been to neuro drs and they think she has "something like ALS". One of them put on the medical reports after performing an EMG that he suspected monomeilc amyotrophy. I don't agree with the doctor because even though the muscle wasting and loss of muscle mass is primarily noticeable on the left leg, she is also having issues with the right leg as well. She is also having the muscle twitching all over her body. The neuro dr at a teaching hospital said that the machine was going completely crazy and he has barely started the EMG. When the twitching goes on it is painful. Since 2008, she has gone from dealing with a drop foot on the left side to barely able to get around with a walker to go a couple steps.
Now, she is having days where all of the sudden, like a light switch being turned off, that she loses control/feeling of both legs and even if she can get to a stand with help, its like everything from her waist down becomes like jello. There is no rhyme or reason to this happening and nothing seems to bring this on--it just happens.
I was wondering if anyone who has been told that they have PMA has experienced similar symptoms.