Old 03-17-2010, 07:02 AM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Goran Goran is offline
New Member (Say Hi)
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Default Comparison with your history...

Hi everyone

I'm a 22-year old guy that lives in Sweden and I got in touch with this website today (well actually, I decided to post something on the forum today..).

The thing is that I've been having these, I would say, serious symptoms of what I fear could be PMA/ALS.

I've done one EMG/EMS test and it came back clean. Done MRI scans, clean aswell. Then you might ask why I'm writing this, well, since two years ago, I've had muscular atrophy in my left leg (the whole leg, from the foot to like, the hip) and just three months ago, I've also started to feel it in my left arm.

I've had fasciculations for two years now everywhere on my body, but the atrophy is right now in left leg and left arm.

The reason why I'm posting is because I'm very curious in how it started for you out there. I can say, that in the spring of 2005 (april), I started to feel strange in my left leg and at first I thought it was sciatica. But as time went on, and I actually didnt feel anything else but that "strange feeling" getting just a little worse over the years, two years ago I started to see the changes in the leg. Then, today, I can't do much. I can't run, I walk for short moments or it starts to ache everywhere in the leg. I was very active aswell but nowadays I "only" do the gym but I'm sure that I wont be able to do that either properly because of the arm.


I have some more tests in May this year, but I would really like to know how it started for you.
Goran is offline  
Old 03-17-2010, 07:06 AM #2 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Goran Goran is offline
New Member (Say Hi)
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Default Re: Comparison with your history...

I would also like to add, that, it's still progressing as we speak. It's very easy to feel something like this going on in your body, despite having doctors and others saying that you're just imagining it. I mean, come on, you KNOW when you're not able to walk properly anymore or when your knee feels busted and "naked" because of the loss of muscles around it. You KNOW when the bottom of your foot feels thin because of the fat loss under it and that your foot has shrunken from one size to another. I just want to hear your stories aswell so that I have something to compare to, because my I start to wonder if my doctor found his license in a box of cereals.


best regards
Goran is offline  
Old 03-17-2010, 07:08 AM #3 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Goran Goran is offline
New Member (Say Hi)
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Default Re: Comparison with your history...

One more thing to add, also, my right arm feels so much "thicker" when I do like a fist, I can feel the skin just hitting the bone when I do a chin-up in the gym or something, compared to my right arm which feels thick and strong. It's kind of obvious these things and I know that you know what I'm talking about.


br
Goran is offline  
Old 03-18-2010, 02:02 PM #4 (permalink)
KANSASTOM's Avatar
Member
 
Join Date: 2008
City: wichita
State: ks
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 165
KANSASTOM is on a distinguished road
KANSASTOM KANSASTOM is offline
Member
KANSASTOM's Avatar
Join Date: 2008
City: wichita
State: ks
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 165
KANSASTOM is on a distinguished road
Default Re: Comparison with your history...

It is time to get another emg, this will give you some direction. You are very young, have you looked into Monomelic Amyotrophy?
KANSASTOM is offline  
Old 03-18-2010, 03:37 PM #5 (permalink)
trfogey's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Raleigh
State: NC
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,042
trfogey is on a very distinguished road
trfogey trfogey is offline
Extremely Helpful Member
trfogey's Avatar
Join Date: 2008
City: Raleigh
State: NC
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,042
trfogey is on a very distinguished road
Default Re: Comparison with your history...

Actually, most of us probably don't know what you are talking about because nothing you have described points in any way toward either ALS or PMA. Another disorder, perhaps, but not ALS or PMA. Therefore, there is nothing in our histories that is relevant for comparison to your current situation, despite what your "research" and Dr. Google seem to be telling you.

A clean EMG rules out a diagnosis of either ALS or PMA because the lower motor neuron death characteristic of those two diseases shows up on an EMG and the EMG would not be called either normal or clean. In addition, if you had LMN death going on in your leg since 2005 and in your arm for two years, you would be much poorer condition than you are now-- probably unable to walk at all and certainly unable to do a chin-up.

Good luck to you in your search for a diagnosis. If you give your doctors a chance and stop trying to do their job for them by self-diagnosing on the Internet, I'm sure you'll get the right result.
trfogey is offline  
Old 03-20-2010, 07:24 AM #6 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Goran Goran is offline
New Member (Say Hi)
Join Date: 2010
City: sweden
State: sweden
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 4
Goran is on a distinguished road
Default Re: Comparison with your history...

Hi all

First I would like to thank you for your posts


I'm going to do this EMG now in May, then we will see what it brings up.. Until then I can wait, and I'll post here after that.


Best regards
Goran is offline  
Old 04-02-2010, 12:02 PM #7 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default Re: Comparison with your history...

Good luck Goran. I think you've got something going but it is most likely not ALS. Let the docs explore.

AL.
Al is offline  
Closed Thread

Tags
ache, als, arm, atrophy, back, emg, fasciculations, fear, foot, hip, mri, pma, symptoms, test, tests, website


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Family history Patrickgorman86@gmail.com Do I Have ALS? Is This ALS? 6 08-27-2015 02:52 PM
History of Fascilulations/twitching question KimT General Discussion About ALS/MND 3 05-31-2015 02:41 AM
My Battle With Fear of ALS (Family History) darrellacoustic Do I Have ALS? Is This ALS? 7 02-14-2015 11:26 PM
Terrified, family history Helping hands Do I Have ALS? Is This ALS? 15 09-11-2014 03:14 PM
Long history with a question monster Do I Have ALS? Is This ALS? 6 01-04-2014 06:41 AM
My atipic history - very scared caio Do I Have ALS? Is This ALS? 8 07-17-2013 09:12 PM
Worried for my Dad - Family History nwalk Do I Have ALS? Is This ALS? 6 08-21-2012 08:39 AM
Family History Of ALS Now Me? sumedude007 Do I Have ALS? Is This ALS? 4 01-03-2012 09:03 AM
als history ellaa General Discussion About ALS/MND 17 08-25-2010 08:13 PM
Constipation is now History! rickmcmahan General Discussion About ALS/MND 2 11-28-2006 09:44 AM


All times are GMT -5. The time now is 07:38 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016