Kariann
New member
- Joined
- Oct 20, 2009
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 10/2009
- Country
- US
- State
- Wa
- City
- Seattle
My sister has just been diagnosed with PBP yesterday. I don't know where to get information for myself and her. Right now the only thing that consumes my mind is that she is dying and I don't know how to talk about it. She has 3 little kids and a husband and lives far away from me. She seems to have a great attitude about it so far but she is really good at holding everything inside. A friend of ours is researching clinics and support groups in her area. My question is, what do I do know? Is there a specific book that is helpful and informative? Is there anyone here who has the same thing and is in their 30s like my sister? -big sister