mommaof4
New member
- Joined
- Oct 19, 2009
- Messages
- 5
- Reason
- Friend was DX
- Country
- US
- State
- Washington
- City
- The Woods
I just recieved word from my best friend that she has been diagnosed with PBP. It has taken quite a bit of time to come up with this diagnosis. She has been run through test after test and seen specialist after specialist. I am not sure what to do now? She is a 30 year old mom of 3 kids (they are 5 and under). I am having trouble finding any definite answers to what happens now?
She has been having trouble talking for about a year now...sounded like she was "stuffy" or had gotten a new retainer. When we spoke last it was much harder to understand some of what she said and she had to repeat herself. Her husband and I were the only ones that didn't hear a big difference in her speech, and I am really concerned because I can hear what others have been talking about now.
Not sure how to ask this, but I can't find answers anywhere and I don't think this is the best time to bombard her with questions. What is the life expectancy with PBP?
Thanks to anyone who takes the time to read this and is willing to pass some information on.
She has been having trouble talking for about a year now...sounded like she was "stuffy" or had gotten a new retainer. When we spoke last it was much harder to understand some of what she said and she had to repeat herself. Her husband and I were the only ones that didn't hear a big difference in her speech, and I am really concerned because I can hear what others have been talking about now.
Not sure how to ask this, but I can't find answers anywhere and I don't think this is the best time to bombard her with questions. What is the life expectancy with PBP?
Thanks to anyone who takes the time to read this and is willing to pass some information on.