revelee2
Member
- Joined
- Sep 11, 2009
- Messages
- 12
- Reason
- PALS
- Diagnosis
- 09/2009
- Country
- AUS
- State
- NSW
- City
- Wollongong
After several months of slurred speech, problems swallowing, excessive salivation and a tongue that seemed too big for my mouth, this 56 year male is now the official owner of the label "Progressive Bulbar Palsy".
My career as a Registered Nurse is Kaput due to my speech and my dog can't believe its good luck being taken on long daily walks now!
My reading indicates that I can expect to expire sometime between 6 months and 3 years.
My Neurologist commenced me on Rilutek which can extend things by 2 to 3 months.
At this point I am not keen on taking the ventilator route but I would like to be around to see my 15 year old finish high school, so who knows.
My career as a Registered Nurse is Kaput due to my speech and my dog can't believe its good luck being taken on long daily walks now!
My reading indicates that I can expect to expire sometime between 6 months and 3 years.
My Neurologist commenced me on Rilutek which can extend things by 2 to 3 months.
At this point I am not keen on taking the ventilator route but I would like to be around to see my 15 year old finish high school, so who knows.